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-   -   Is it myasthenia gravis or not?i am still confused. (https://www.neurotalk.org/myasthenia-gravis/254128-myasthenia-gravis-am-confused.html)

Jeid 08-18-2019 04:02 AM

Is it myasthenia gravis or not?i am still confused.
 
Hello everyone.i will state here some of my experiences and i hope theres someone who can patiently read it and share some thoughts.
I am 30 years old female.yes ia m confused with my condition right now..because last year 2017 i was ad mitted in a hospital because i am having a crossed eye and double vision as well and headaches. I undergone some tests like emg ct scans and mri . They are all normal.i went through lumbar puncture also and they found out i am having an increasing pressure in my head and the causes are unknown. So the doctor prescribed a diuretic to lessen that pressure..the medicationis acetazolamide and it went well..my double vision gradually disappears and also thr cross eye.after 2 months, because i havnt bought my medications and havn't taken for a week..my condition went back..gradually cross eye went back double vision as well and worse i've got droopy eyelid on one side only..then i continued my acetazolamide but it doesn't went well as fast as before..i suffered having double vision forlike 3 months i think but eventually the double visions lessens..and then this year january, iwent to another neurologist to have a second opinion..i undergone emg ct scan again and the result still negative for myasthenia gravis. I am now confused because i have some symptoms experiencing regarding myasthenia gravis yet all the tests are negative as well. Can anyone have a greater knowledge of this condition and share some thoughts? Whatbare the right thing to do? I am currently experiencing on and off double visionand i need to focuse to what i am looking at for a cleaarer vision and i am having headaches as well bit it is tolerable...thank you.

kiwi33 08-18-2019 04:19 PM

Hi Jeid

Welcome to NeuroTalk :).

I have no direct experience of MG but do know about immunology.

The eye weaknesses you have described fit with MG.

MG is an autoimmune disease. What this means is that people with it make antibodies against proteins which are found at neuromuscular junctions. This can lead to eye problems like yours. Two neuromuscular junction proteins called AChR and MuSK have been implicated in this.

The information in this site may help you.

Myasthenia gravis - Better Health Channel

All the best.

Jeid 08-19-2019 12:10 AM

Thank you very much for the response and the link you have given helped me a lot to details about myasthenia gravis..but my problem is why does my diagnostics tests results to negative in myasthenia gravis.i undegone mri ct scan emg but all are normal but i am still experiencing some of the symptoms of myasthenia gravis like difficulty focusing in a certain direction, double vision and headaches.my body tells i do have myasthenia yet my diagnostics are not.

kiwi33 08-19-2019 07:13 PM

Maybe some of the tests that you mentioned (MRI and CT scans) were done to examine your thymus gland.

Abnormalities in the thymus can be linked to MG but this is not always the case.

Jeid 08-19-2019 10:39 PM

Quote:

Originally Posted by kiwi33 (Post 1279012)
Maybe some of the tests that you mentioned (MRI and CT scans) were done to examine your thymus gland.

Abnormalities in the thymus can be linked to MG but this is not always the case.


I am hopeful that this is not MG. I took SFEMG and i am negative to MG.i really do hope o would know what is happening to my body and find a doctor who can figure it out..thank you very much for the info.

levisanz 08-26-2019 03:57 PM

I spent 3 months going from one specialist to the other only to be told that there was nothing wrong with me. It wasn't until I saw a neurologist that ordered a blood test specific to MG that I found out that I had it.


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