IV Lidocaine Infusions for SFN - anyone?
 

Has anyone heard of or are receiving intraveneous lidocaine infusions for small fiber neuropathy? I have been for 3 months at 900mg weekly and I would love to communicate with someone regarding their experience. Thank you

Hi, I tried it and it did not help me. Getting IVIG infusions now.

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How did you get IVIG infusions for SFN? Do you have a clear autoimmune condition that was linked to your neuropathy?

Seems that would be my next step if I don't stick it out with lidocaine. Just started my 2nd to last max dose increase. Its been 3 months overall and I'm not convinced 3 days a week at best is sufficient pain relief when I still need pain pills. Time will tell. How is IVIG working and how long have you been doing it?

That's what I thought was needed and my Neurologist told me otherwise. I can receive IVIG without having an autoimmune disease. Hmmm...

I have been lucky enough to receive lidocaine infusions for the past 10 years. They have changed my life.

Wow!
 

Hi and thank you for posting this and I'm sorry to make my response about me. Reading this gave me hope that I have not had in a long time.

I had a diagnosis epidermal steroid injection to see if L4-5 was the cause of my small fiber neuropathy symptoms. The doctor injected a small amount of Lidocaine before the steroid injection. For at least 3 hours afterwards the Lidocaine made me feel completely like my old self before the SFN. The steroid never did much of anything for me so I did not repeat the procedure.

Are you saying the infusion only last 3 days or that you get 3 infusions a week? Do they completely take away your symptoms during those 3 days? Are the infusions injected in a vein as other infusions are?

My main SFN symptom is chronic burning and I would give just about anything to have a couple of days a week that I felt normal again.

Once again I apologize for hijacking your post.
carol

That's wonderful news!
 

Hi Malawgirl08.
I already responded to twinney with my interest in this subject. I am so happy for you that lidocaine has been such a help. I never knew lidocaine infusions were a possibility. Would you mind if I PM you to ask questions?
carol