NeuroTalk Support Groups - has anyone dxd with JUST sfn tried plaquenil?

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- - has anyone dxd with JUST sfn tried plaquenil? (https://www.neurotalk.org/peripheral-neuropathy/254241-dxd-sfn-tried-plaquenil.html)

mspennyloafer

09-14-2019 12:42 PM

has anyone dxd with JUST sfn tried plaquenil?

I have not gotten a biopsy yet but I'm not in a rush bc of lack of tx options
My c3 c4 have come back out of range low and when in range at the very bottom of range but all the tests for AI diseases are negative

Just curious if it's helped anyone with idiopathic sfn

mhw69

09-16-2019 05:52 AM

Quote:

Originally Posted by mspennyloafer (Post 1279685)

There are some people who posted in 2018 who had used Plaquenil. I don’t believe that they noticed any difference either way.

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