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djl87 09-30-2019 11:06 PM

POST VACCINE NEUROPATHY - Who else found doctors have no clue about it??
Hi - as I have posted on this forum before , I received a late diagnosis to a Hep B vaccine reaction . one day after vaccination I had tingling in my leg which spread to my whole body / burning sensations in my thigh/ arm pain / then later leg pain and body wide muscle twitching / plus some occasional difficulty in catching my breath / some mild muscle atrophy. Now in my case I obviously had more mild inflammatory neuropathy ... I never lost the ability to walk... maybe this was the problem in getting a diagnosis. But I went to family physician a million times, same answer each time .... vaccine shouldn't cause this ,.. it should get better on its own.... numerous visits to A and E departments (UK) and physicians saying I'm ok ..vaccine won't cause big problem... go back to your family physician who can refer you to a neurologist ...... any way we paid lot of money to go private and see a neurologist ... who referred me for an EMG/ nerd e studies..... by this time MAY (4.75 months and by this time i had started to improve ) the Emg and nerve conduction studies showed widespread nerve damage through my body ...... with a diagnosis of small fibre/ sympathetic and motor neuropathy ... autoimmune reaction to vaccine .... i was lucky i didn't die... lucky my body somehow fought for me without any treatment ........

Who else has found a complete lack of basic knowledge amongst doctors and physicians that vaccines CAN all be it rarely cause autoimmune neuropathy like GBS etc??????? ..... It is criminal .. I could have died... A and E departments should be lectured on the signs and symptoms of post vaccine serious reactions ....

Neuro_member 06-18-2020 01:13 PM

Hi, I believe I have the same symptoms after a rabies vaccine. Can you please let me know what kind of treatment would normally be issued? It has been more than a year since the vaccines but am recently starting to notice that the weakness in my left leg is increasing.

caroline2 06-18-2020 01:40 PM

This neuropathy issue(s) are so many and you'll find info here any day so much more than the doctors. I've posted about what I use and have NEVER gone to docs about the neuropathy that I KNOW where it came from....

Neuro_member 06-18-2020 08:28 PM

can you let me know what you use? Ive seen you posted quite a bit, and could not immediately find it. Thanks.

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