Parkinsons
 

Hi new here didn't expect to be in a support group just a few days ago but Tuesday i started having tremors in my inner left leg.Had been dealing with anxiety that only has gotten much worse since i found out resting leg tremors have a very good chance to be Parkinsons disease.Was just wondering if there is any chance it could be something else?Or maybe just looking for support as just not feeling great right now.Thanks in advance

Hi Me1977

Welcome to NeuroTalk :).

Your leg tremor might indicate Parkinson's though there are other possibilities. Getting a referral to a neurologist would be a good plan.

All the best.

This is a very confusing group
 

I am a 78 year old married woman who has had Parkinson's for several years. Now my 42 year old daughter also has early onset Parkinson's. I am more concerned about her than about me. I would like to be in contact with other young people to see how they are managing their disease.

I find all the various "stuff" too confusing to figure out but that is what I want from this group.

Hi Percy

Welcome to NeuroTalk :).

I am sorry that you have found the board confusing.

As far as Parkinson's is concerned you could have a look at the "Sticky" threads at the top of its forum (https://www.neurotalk.org/parkinson-s-disease). The information in them could help both you and your daughter.

With care.

Hi Percy -

My name is Todd, I am 47, and I was diagnosed with Parkinson's around 5 years ago. I believe that each person handles the diagnosis differently. I find that my friends and family have a harder time dealing with my diagnosis than myself. I am lucky, my medications are working, I have a wonderful support group and I am still able to perform my daily duties to maintain employment.

The hardest part for me is the impact Parkinson's has on my hands. My job involves a lot of time on the computer. When my medications are working I can type swiftly and accurately. When they are off, a simple sentence can take 10X the amount of time to complete. I know there are tools available to help with my typing. There is a voice recognition application that allows users to speak and the software translates that into written words. I don't currently use the application, but it's good to know it is out there.

Additionally, I play a lot of golf and the my game can go sideways quickly if my medication wears off. This is not a big deal and my wife is amazing and supports my getting out of the house for a few rounds a week. I figure if my golf game is one of the biggest side effects of Parkinson's then I really have no complaints.

Like I said, I believe each person deals with the diagnosis differently. There are a lot of factors to consider; your daughters outlook, the progression of her Parkinson's, how well her medications work, how Parkinson's impacts her life goals, her support group...….and the list goes on. I would say that there are a lot of tools and support groups out there to help. If you find something that helps, stick with it. If something isn't helping, move on.

I wish you and your daughter the best.

Todd