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-   -   Cosmic Dorm (treatment review) (https://www.neurotalk.org/als-news-and-research/254929-cosmic-dorm-treatment-review.html)

MuonOne 01-21-2020 01:53 PM

Cosmic Dorm (treatment review)
 
Not scientifically studied, but housing specifically designed to serve numerous Amyotrophic Lateral Sclerosis patients may prove to be the best treatment developed so far:

Leonard Florence Center for Living, Chelsea, Since 2010
Short Term Rehabilitation | Skilled Nursing Facility In Chelsea, MA

Team Gleason House, New Orleans, since 2013
Team Gleason House | Team Gleason

Similar projects under planning
ALS Residence Initiative: Steve Saling
Who is Steve Saling? - ALS RESIDENCE INITIATIVE (ALSRI)

ALSRI (full web site)
ALS RESIDENCE INITIATIVE (ALSRI) - www.ALSRI.org


Medically recognized treatments

vitamin e
If supplements used for ten years, may reduce risk of developing Amyotrophic Lateral Sclerosis by about fifty percent.

pulmonary pacer
Placed at optimum time median advances possibly twenty-four months
one study with weak results raised safety question, under review.
Completed studies with published results:
Moons Details
040 N=Σ- 0000 interpolated historical (most if not all were untreated)
056 iN=16 2004 Onders's Pilot (Onders's, et alia) protocol
041 N=43 2007 Onders's historical selection of (Lechtzin, et alia's, NonInvasive Ventilation study, June 2007)
062 iN=84 2011 SSPB {dataset submitted to FDA for HUD} (Onders's, et alia) protocol
031 iN=32 2012 DiPALS started weak side of (Onders's, et alia) protocol (late pacing, litmus)
049 N=37 2012 DiPALS per protocol standard of NonInvasive Ventilation care (only untreated 'team')
056 iN=36 2013 RespiStimALS started before NonInvasive Ventilation needed (early pacing, litmus)
146 iN=36 2013 RespiStimALS standard started within (Onders's, et alia) protocol
RespiStimALS standard result very high . . . (based on electronic reports).

non-invasive ventilation
Properly used median advances possibly six months

Riluzole
When taken as directed median advances seventy-five days, plus or minus fifteen days.

Radicava
new, cross prescribe may help some patients.

Deployment of computers

Internet access
widely valued by patients

Google glass
shows great potential

Boston Dynamics
robotics will be valuable


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