Chronic small fibre neuropathy
 

I'm a 41 year old male in the UK. I have such Chronic Fatigue and terrible Small Fibre Neuropathy I just don't know what to do anymore. It is now all over my body. I am about to lose the only thing I have left, my job. They will not do any testing but it has to be SFN. This follows on from Sicca Syndrome which I believe I got from Finisteride. I have gone from an outgoing and superfit guy ready to live with my Spanish girlfriend in Spain, to losing it all.

I am on antidepressants and I've been asked to try Pregablin. Can you help? Please?

Research Pregablin online, and ask your neurologist. They offered to me, and after the second pill, I realized it was awful.

I have PPN in all 10 fingers, and 10 toes, for years, growing. It sucks, but hang in there. Medication buys you some time too, talk to your doctor, while they might be little help, maybe they can prescribe you something, or bad old opiods, that I prefer VS pregablin or gabapentin (also they tried, did not even open the box, as it is an older version than Lyrica.)

Try pregabalin. It can help. If it doesn't, try gabapentin, which is very similar, or a time-release gabapentin. The side-effect people complain about the most is that it makes them sleepy, but that often diminishes over time. If those don't help, or you can't stand it, see what else they've got that might. Only you will know what works, and only you can say if the side-effects are too much. There's also a bunch of non-pharmacologic therapies: mindfulness meditation, acupuncture, massage therapy, tai chi. Good luck.

Hi!
Just wondering how you are doing? I’m in the similar situation. Only my pain is from trauma done by injection. I m trying to have some testing done to get an official diagnosis but it’s almost impossible with COVID..

some of these stories are just heartbreaking.