Lyme Disease
 

I know it's not easy to diagnose - but is it possible to have 3 tests come back negative but still have it? I've read that blood work can come back as a false negative. Just curious on what everyone's take is... (didn't see the Lyme thread was active which is why I'm posting here)

TLDR version of my issue - symptoms for 2 years - dizziness, lightheadedness, burning in face, pressure in throat, fatigue, neck pain, sensitivity to light (hard time shopping in dept stores because they're so bright, driving, etc), floaters and flashes of light in peripheral vision - MRI brain w/ and w/ out contrast - clean. Cervical spine - clean, except compression and thecal bulging in C5 and C6. MRCP 2 years ago, didn't show any issues with my lumbar or T spine except for slight scoliosis and bone island. Blood work clean, except elevated Anticardiolipin. History of low B12 and vit d but taking supplements for that, ontop of magnesium (Was told this could all be from migraines).

Thanks :)

I was a nurse and certainly can’t diagnose Lyme Disease for anyone but, I have chronic Lyme and there are so many variables. The CDC uses a two tiered testing, but as I say as do many other people that I know with Lyme Disease, There are many false negatives but, no false positives. May I ask why you related your symptoms to Lyme? Have you had other issues that lead you to think that Lyme was the cause of the other issues? I won’t ask “Where are you from?” Because that makes no difference. Lyme is everywhere. There is way to much information out there on the disease and treatment etc., I would ask you to go slow, do research, feel free to contact me, although I’m new here tonight and I don’t know my way around yet to get Private Messages or if they’re available here.

I don’t know what “Quote message in reply” means. I do have many years of experience with Lyme. Again, please go slow. It can be very overwhelming just do research about it. If you have a way of watching a documentary called “Under Our Skin” I highly recommend it. I’m not sure if Netflix or which venue still has it and it’s sequel is called “Emergence”. Both of them are actual Documentaries, I would leave it to the watcher to decide what they believe or don’t believe. I know I call it living in Hell! What other people think of what I believe is none of my business, I’m just trying to figure out things for my own survival and if I can help one person along the way, that’s a bonus. Good Luck and again, reach out if you need me.
Mark