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polockblind 02-06-2020 11:01 PM

Myasthenia
 
Hi,
Just diagnosed with Myasthenia Gravis. Wow, now what? Sorta not clicking with me. What’s the first thing I need to do? Anyone know?

kiwi33 02-07-2020 01:57 AM

Hi polockblind

Welcome to NeuroTalk :).

Myasthenia Gravis is an autoimmune disease. That means that your immune system recognises normal body proteins as being foreign in a way which is similar to if you have a bacterial or viral infection.

The specific normal body proteins which are involved in Myasthenia Gravis are naturally found at neuromuscular junctions. Two of these are the acetylcholine receptor and the MuSK protein.

There is a general discussion of Myasthenia Gravis here Myasthenia Gravis Fact Sheet | National Institute of Neurological Disorders and Stroke .

The Myasthenia Gravis forum here (https://www.neurotalk.org/myasthenia-gravis/) is very active. Its "Sticky" threads are worth reading and also if you share your story there you will get support and good ideas from other members.

All the best.


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