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-   -   7 week demyelinating flare-up (https://www.neurotalk.org/multiple-sclerosis/255553-7-week-demyelinating-flare.html)

jesxes 05-23-2020 06:34 PM

7 week demyelinating flare-up
 
is it too late to treat a 7 weeks old mainly pure sensory demyelinating flare-up with 1 gr IV corticosteroids?

agate 05-24-2020 12:43 AM

According to this WebMD article, steroids to treat MS flares should be started within 14 days after symptoms begin, and so it probably isn't too late.

IV Steroids for MS Flare-Up Treatment: Effectiveness and Side Effects

Your doctor should be able to guide you in this. There may be reasons why steroids should or should not be used this time. I hope you have a competent doctor.

Snoopy 05-24-2020 11:53 AM

Hi jesxes and welcome to NeuroTalk :)

After reading your previous posts your Drs. haven't figured out what is causing your symptoms, is that correct?

In the case of Multiple Sclerosis sensory symptoms are not typically treated with steroids. These types of symptoms can come and go all on their own. Steroids may or may not help symptoms and they come with serious side effects.

It is best to consult with your Drs. for the most accurate information based on your individual situation.

jesxes 05-24-2020 11:32 PM

Well, I had MRI's on my head and back last Friday, with contrast, and they discovered 5 lesions in my brain and 3 down my spine, so the presentation fits with a probable debut of MS, but as it began down on my feet and then went up to my legs and trunk, it took several weeks discarding sciatica, diabetes, and together with the system collapsed due to covid situation, it's been 7 weeks to reach a demyelinating Dx, that's what I was asking if 7 weeks after the onset was ok or too late...

I'll have a spinal tap this week to rule things out, I'm a male, 31 years old.

At least my anxiety and head is more stable, now that things are clear. I suppose I will be prescribed more treatment if the IVMP don't make any improvemnt this week.

Thank you for your responses!

agate 05-25-2020 12:42 AM

Not exactly news you wanted to hear, I'm sure, jesxes.

I'm so sorry you seem to have MS. Waiting 7 weeks between onset of symptoms and a diagnosis is almost fast though. Some people wait for years, even 10 years, going from one doctor to another, before a firm diagnosis of MS.

The doctor may want you to start soon on one of the DMDs (disease-modifying drugs). You might want to read up on those if you're not already familiar with them because there are quite a few of them available now.

Best to take it one day at a time, jesxes. Hope you'll let us know what's happening with you.

Snoopy 05-25-2020 10:00 AM

Hi jesxes and sorry about the possibility of MS.

You and your Neurologist can decide if trying steroids (IVSM) is a good option for you.

Unfortunately, steroids are not a cure all for symptoms and it is possible for symptoms to resolve on their own. Many with MS learn to live with some symptoms :(

It took 3 months for me to be diagnosed (PCP, referral to Neurologist, testing, diagnosis). During the entre time I was in an acute exacerbation(relapse, attack). After diagnosis I was given a prescription for oral steroids. It took 6 weeks to see any improvement and a year for recovery which included trying to regain mobility. I was diagnosed at the age off 23.

Take care.


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