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e-gised

06-23-2020 01:52 PM

Hello

Hi everyone,

My name is Nicky and im the father of a beautifull 3yo girl named charlie who has SCN2A. Unfortunately here in Belgium there is absolutely no research or help..

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kiwi33

06-23-2020 04:01 PM

Hi Nicky

Welcome to NeuroTalk :).

I am sorry to read about your daughter and SCN2A.

This (long and fairly technical) PDF is from Belgium. It might provide you with some people you can contact there.

http://www.epilepsy-colloquium2019.c...en_Belgium.pdf

All the best.

e-gised

06-27-2020 01:36 PM

Thank u so much, ill be checking it out ! Just made an enquiery for help in philladelphia

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Kitt	06-28-2020 12:27 PM

Welcome Nicky.

kitt

funnylegs4

06-28-2020 03:27 PM

Welcome! I'm sorry Belgium does not have the resources you need.

agate

06-29-2020 12:45 AM

Welcome, e-gised!

I'm so sorry about your daughter. It must be discouraging and frustrating to find so little help with her condition.

If you browse around among the posts here, you might find some helpful information.

I hope that you will discover some useful resources.

e-gised

06-29-2020 02:11 PM

Quote:

Originally Posted by agate (Post 1287266)

I hope so :-)

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