NeuroTalk Support Groups - CRPS in mouth?

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - CRPS in mouth? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/255815-crps-mouth.html)

annabanana123

08-04-2020 03:32 PM

CRPS in mouth?

Has anyone had this spread to (or start in) your mouth/tongue? I am feeling a lot of burning there today and it's miserable. If you have do you have any tips/tricks?

Thanks!!

Lyla Grace

11-04-2020 03:07 PM

I have RSD in my mouth, sinuses, eyes, and ears as well as the rest of my body. My mouth can get incredibly sore. One thing that helps me is taking the supplement L-Lysine (not regular Lysine) but that helps with soft tissue repair. It's cheap and I take about 4 a day when I'm in a flare. Also swishing with warm salt water. I'm sorry you are hurting.

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annabanana123

11-05-2020 09:59 AM

Thanks Lyla! I will definitely look into that. Thankfully it's not all day every day so I can eat most of the time - and during that flare up I do a lot of protein shakes and greek yogurt and smoothies. It's no fun but we all learn to cope I guess when there's not another option

Kitt	11-05-2020 10:23 AM

Welcome Lyla Grace. :welcome_sign:

Kitt

BioBased

11-07-2021 02:16 PM

Quote:

Originally Posted by annabanana123 (Post 1288117)

Has anyone had this spread to (or start in) your mouth/tongue? I am feeling a lot of burning there today and it's miserable. If you have do you have any tips/tricks?

Thanks!!

I just found this old post of yours whilst frantically chewing sour gum to deal with my mouth pain. My mouth issues started after a molar extraction three years ago and it hasn’t abated. Thus far no one knows how to help me.
How are you doing?

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