CRPS in mouth?
 

Has anyone had this spread to (or start in) your mouth/tongue? I am feeling a lot of burning there today and it's miserable. If you have do you have any tips/tricks?

Thanks!!

I have RSD in my mouth, sinuses, eyes, and ears as well as the rest of my body. My mouth can get incredibly sore. One thing that helps me is taking the supplement L-Lysine (not regular Lysine) but that helps with soft tissue repair. It's cheap and I take about 4 a day when I'm in a flare. Also swishing with warm salt water. I'm sorry you are hurting.

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Thanks Lyla! I will definitely look into that. Thankfully it's not all day every day so I can eat most of the time - and during that flare up I do a lot of protein shakes and greek yogurt and smoothies. It's no fun but we all learn to cope I guess when there's not another option

Welcome Lyla Grace. :welcome_sign:

Kitt

I just found this old post of yours whilst frantically chewing sour gum to deal with my mouth pain. My mouth issues started after a molar extraction three years ago and it hasn’t abated. Thus far no one knows how to help me.
How are you doing?