Peripheral Neuropathy Diagnosis
 

Hi,
I have just been diagnosed with minor peripheral neuropathy after experiencing numbness in soles of my feet. Had EMG and this showed the diagnosis as minor, I think the numbness has been there for a long time like months. Previously I felt when walking bare feet on wooden floor that there was grains of sand but there wasn’t, that was years ago. Since my diagnosis I feel like the condition is moving first to the top of my feet and the slowly up my legs. Going back to my GP after Xmas but wondered if this is common and if the progression will get worse.

Hi suzyt

Welcome to the community :).

It might be worth checking out the PN forum ( https://www.neurotalk.org/peripheral-neuropathy/) to see what kind of things members tend to ask.

I hope that your meeting with your GP goes well.

Best wishes.

welcome suzyt. :Tip-Hat: Hope you find an answer.

Suzyt, welcome and you came to a good place for a lot of neuropathy information. a LOT... and since I've been dealing with it for over 10 yrs due to hip replacement, I can say it does a lot of strange STUFF in the body, mine for sure...I can speak only for me, and I'm learning more and more and managing what comes my way...some days I get what I know understand as a "flair" and then there is the normal every day nerve pain... Not fun but it's manageable.. Personally I have NOT seen doctors for this damage as for one, I do not take pharma drugs and that is what they offer...so for me, Dr. Google, friends and this forum get me thru it...

And foods can exacerbate it all, sugars are evil. Watch them and when I don't I pay.

Progressive Peripheral Neuropathy GP update
 

Saw GP today. Basically all blood tests ok, so back to neurologist for questions.
1. Could it be hereditary, both my sister (82) and my mother at 80+ years have had difficulty with their feet. Never found out what the problem was. Can I find out if it is hereditary because I have. 44 yr old son and 2 grandchildren. Want to know so I can let them know.

2. Does the progression that I am experiencing going to be worse sooner. Or is it going to progress slowly.

3. What preparations do I need to make in my life if progression is rapid.

Any advice, info is welcome particularly about hereditary stuff
Suzy

Makes me wonder if it is hereditary like Charcot Marie Tooth syndrome (CMT). EMG and NCV are good to have. Hope you find an answer. If it is CMT it will progress. And CMT is the most common "inherited" neuropathy.

Thanks for advice. Can anyone who has CMT advise if the rate of progression?

Symptoms vary greatly within the same family. Nobody can predict how it will progress. And there are over 70 types of CMT and still counting. CMT1A is the most common. You should find out if CMT is indeed in the family.

Appreciate all your comments thanks. Won’t be able to see the Neurologist until late January. Will update then, in the meantime trying to not panic and get depressed. Would love to hear from anyone who is experiencing CMT symptoms and how they have managed.

Hi suzyt, It's a long time waiting to see the Neurologist until the end of January if you're really worried but try not to overthink it all and make yourself sick while you wait.

Peripheral Neuropathy Forum

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