Thoracic Outlet Syndrome Makes Me Sad
 

Hi everyone, I'm 29 and have had symptoms for around 6-7 years. Most likely diagnosis seems to be TOS, but my GP just wants to keep doing EMGs on my arms, which have showed nerve degeneration but not much else. Hoping to find some people willing to believe me and maybe offer some good resources for dealing with it!

Explore the sticky threads on our TOS forum..you will learn so much to help you get best care..
Also use our search tool using double or triple crush syndrome..

With TOS EMG/NCV will rarely show anything unless you are also having nerve impingement or C spine impingement..
Few Drs are fully knowledgeable with TOS, or only have limited /biased knowledge and will not be able to correctly dx you..
They often wait until it is too late for expert PT/chiro rehab and surgery is the only option left.

There are many versions of TOS and mixed symptoms for TOS--
NTOS- nerve symptoms, VTOS- blood flow compression symptoms as well as a mix of both..
The sticky threads or search can find info on those topics so you can find what might apply best in your case..

Any Xrays or MRIs yet? Ask about it..
That is usually next step, extra cervical rib, large bones compressing nerves or blood flow in collar bone/upper chest areas.. also could rule out any C spine issues..

Any PT evaluation yet? Ask about it.. Or expert chiro..
Good ones can find a lot more than a dr that does not do the positional test or palpate your muscles..

We also have some older posts with symptoms listed, those can help you see what fits or not..

Don't stay with a dr or anyone that is not helping you..your time is important don't waste it.

Welcome batcoins. :Tip-Hat:

Welcome, batcoins!:)

Hi batcoins

Welcome to the community :).

I hope that you will find the community helpful.

Best wishes.