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-   -   MG, immunosuppressant and Covid-19 experience. (https://www.neurotalk.org/myasthenia-gravis/256591-mg-immunosuppressant-covid-19-experience.html)

Davidgonza 04-06-2021 06:41 PM

MG, immunosuppressant and Covid-19 experience.
 
Hi, Iím Carlos. Iím new to this community and just want to share my recent experience with Covid-19 vaccine. I was diagnosed with MG in 2003 and under treatment since. Back in February this year I had my annual Gammaglobulin infusion and because I was about to receive the first shot of the vaccine I decided on my own to pause the immunosuppressant therapy to make sure; at least in my mind, that the immunosuppressant would not interfere with the vaccine efficacy. Also thought that I was covered with my Gamma recent treatment. So, early March, I had my first shot and that same day I felt a little weak and a little short of breath but thought it was the stress and anxiety of the moment. Within a couple of days I had an exacerbation on MG symptoms especially my eyes with diplopia and eyelids dropped almost completely most of the days. I started a pack of Methylprednisolone that eventually alleviated the symptoms. Bottom line, pausing the immunosuppressant therapy was not the best idea. Iím waiting for the second shot in a few days, prepared with another pack of prednisone and restarted the immunosuppressant.

bny806 04-07-2021 10:48 PM

Thank you so much for posting this, I am so nervous about it causing an exacerbation, and have been told to pause my immunosuppressants the weeks I get the injection too. I'll be looking for your update! Good luck, and again, thank you!

Davidgonza 04-10-2021 09:55 PM

Hi! Just received the second dose today, early this morning. No exacerbation so far, only the usual vaccine related immediate side effects like pain and warm sensation at the injection site. Honestly; afraid to say this, but I feel completely normal. Anxious to wake up tomorrow and see how my eyes will be reacting. Will post tomorrow morning one way or the other.

Davidgonza 04-11-2021 03:47 PM

Hi. Day after second dose of covid-19 vaccine update. So far no MG symptoms exacerbation. Residual generalized weakness and droopy eyelids has stayed unchanged since first dose.

bny806 05-06-2021 10:26 PM

Thank you so much for your update, and documenting this for us. I am debating getting it, and I'm so nervous. But of course just the anxiety of it can cause issues nevermind the holding of the immunosuppresants (which i've also been advised to do), and the immune stimulation of the vaccine.... Thanks again - hope your well!


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