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-   -   my daughters story (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/256889-daughters-story.html)

dianne duncan 07-20-2021 01:14 AM

my daughters story
 
Hi all this is about my daughter, we think she fell backward over the dog and hit the back of her head and ended up with an edema of the brain now that the swelling has gone down she has got weakness down her left side and she stutters really bad i am wondering is this going to get better or will she be like this for ever i feel so sorry for her my heart is just breaking she is 32 years old .

thank you for listerning
regards dianne

davOD 07-20-2021 09:29 AM

Quote:

Originally Posted by dianne duncan (Post 1294534)
Hi all this is about my daughter, we think she fell backward over the dog and hit the back of her head and ended up with an edema of the brain now that the swelling has gone down she has got weakness down her left side and she stutters really bad i am wondering is this going to get better or will she be like this for ever i feel so sorry for her my heart is just breaking she is 32 years old .

thank you for listerning
regards dianne

So sorry to hear about your daughter..With all TBI's everyone is different..She will need time, patients, lots of rest..

Ive never changed much in 14 years....My therapists always said give it a year, then 5 years, and by the 10th you will know how its going to be. I thinks its good advise.

dianne duncan 07-21-2021 08:35 AM

Thank you for answering me i think it just help to know someone is listening l suppose only time will tell

Jomar 07-21-2021 10:49 AM

Did that just happen recently?
Give it some time to resolve if so.
If it doesn't resolve maybe consider upper cervical/ NUCCA, if the drs have no other ideas..

Mark in Idaho 07-21-2021 10:53 AM

Welcome to NeuroTalk.

When a backwards fall impacts the back of the head, the doctors often overlook upper neck injuries than can last a long time. C-1 can become unstable and cause inflammation that interrupts nerve function in the body.

Discipline with head and neck posture is part of the recovery process. Some will get help from a upper cervical chiropractor or physical therapist who can help the upper cervical vertebra stabilize.

It can be a prolonged recovery as the ligaments are slow to strengthen.

btw, I don't think there is any evidence to suggest your daughter is finished recovering. Further recovery will be based on self-care with some help from specialists.

dianne duncan 07-24-2021 12:04 AM

when i wrote this about my daughter i really didn't know what to say it was a shock what has happened to her it happened only 2 and a half week ago the first week she spent in the hospital the second week she spent and home with workers coming each day to help her but she is still suffering from headaches and she went to the hospital yesterday they are saying that it looks like she is having a stroke as well. the doctor told her the best place for her was a nursing home she doesn't need a nursing home sometimes i wonder where some of these doctors get there licence from .she is going to have an MRI on Monday to see what is happening and thank you for answering my questions when she went to the hospital yesterday the occupational therapist and a physio therapist said she needed to be admitted for further test as the doctor wanted to send her home .

Mark in Idaho 07-24-2021 11:00 PM

DD, The struggles you are having are common all over the world. Finding the next level of diagnostics and rehabilitation can be a challenge.

It sounds like you might need to look for a neuro rehabilitation hospital. They are not common so it might mean looking a distance from where you are.

Here is one but it appears it requires having supplemental health insurance.
Trauma rehabilitation :: The Victorian Rehabilitation Centre

[ Spinal cord injury

The Victorian Spinal Cord Service, located at Austin Health, is the primary service provider for people with a traumatic spinal cord injury.

Alfred Health is the other service provider predominantly focusing on non-traumatic spinal cord injury.

Patients with a spinal cord injury have complex high-care needs. The majority require access to specialist rehabilitation, equipment, home modifications and attendant care packages funded through an individual support package for long-term care needs.
Acquired brain injury

Acquired brain injury (ABI) encompasses a wide spectrum of brain injuries acquired from traumatic and non-traumatic causes such as road trauma, bashing, suicide attempts and strokes.

A small but significant group of patients with severe ABI's require specialist subacute services to meet their rehabilitation needs. These include intensive nursing and/or managing complex behavioural issues as well as specialist allied health services.

There are two services that care for people with moderate to severe ABI: Caulfield Hospital at Alfred Health and Royal Talbot Rehabilitation Centre at Austin Health. ]


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