NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - DRG Implant, (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/257830-drg-implant.html)

CRPS NYC

07-28-2022 08:29 AM

DRG Implant,

I have basically run out of options for CRPS in my right leg and am down to implanting a DRG stimulator. During the trial I only got about 40% relief but I am seeing a different doctor that thinks he can do better. Can anyone who had a DRG or SCS implanted share their experience? Thanks all!

MichelleL88

08-17-2022 10:17 AM

I have an implant it was put in in May. I am not seeing relief, I get alot of postural stimulation. All I have to do is just move a small amount and I will lose the stimulation to 1 side or all together. I have had it adjusted 3 or 4 times now, I am very upset since was my last hope. They aren't sure why it is like this but I hope you get better results.

CRPS NYC

09-03-2022 05:07 PM

I am sorry to hear that Michelle, I really appreciate you sharing your experience though. I have decided to put the DRG on hold for now as I have found other options to try first.

Kitt	09-05-2022 09:04 AM

Welcome CRPS NYC. :Tip-Hat:

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