Confused
 

I have been given a provisional dx of some sort of dementia. My children dont want to hear about it as it doesnt fit into their plans. I live alone with 20 hrs of home care per week under Home Bound Waiver. I am losing ground. Increased depression. Decreased executive function. Poor personal care etc. I have very little money and no assets. I am scared to death of ending up in a community based, franchised snake pit. Are there options?

Hello MsLouisville,
Sorry to hear what you are experiencing.

Have you discussed your concerns with your doctors, or requested to be assigned a patient advocate? If your children do not want to assist, then having someone to counsel and advocate for you may be the best way to go.
Not knowing where you are or what type of health coverage, those are just some thoughts I have.

I do hope you are able to have someone come alongside to guide you.

Perhaps those with more knowledge in this area will be able to offer some relevant info for you here as well.

Thank you
 

I am reaching out to my Home Bound Waiver case manager for direction. As it stands, I currently dont even have a power of attorney etc as nobody wants the responsibility. My general level of function coupled with severe pain and mobility issues. make me unsafe alone. I've been in several community nursing/rehab facilities as a pt patient and saw blatant neglect and abuse. I dont want to go to go to one when I am in a diminished state. Thanks again for listening