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Hello I am new
Hello everyone, my name is Amanda. I just joined. I am needing support for my health conditions. I have two rare neurological conditions one is Dystonia, the other is unknown neurological condition. I was born with both. I was diagnosed at the age of 13 and my conditions progressed quickly. By the time I was 15 I was unable to move. I got brain surgery for a deep brain stimulator implant in 2010. I got the opportunity to have 29 news station to do a story on my life to spread awareness for Dystonia and DBS. I later got diagnosed with autism and savant syndrome in 2014 by mental health professionals and my neurologist. I also was diagnosed with fibromyalgia and full body nerve damage.
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Hi Mandy,
Welcome to the NeuroTalk Support Groups. :Wave-Hello: If you need any help finding your way around please just let us know and I'm sure someone will help. take care. |
Welcome BatBratMindy. :welcome_sign:
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Welcome, BatBratMindy!
So sorry you've had disabling conditions thrown at you but at least this is a place where you can visit for information and support. You might find some useful posts in the Movement Disorders forum here. If you need help finding it, just speak up.:) |
Welcome to the community.
I hope that other members here will offer you helpful ideas. Best wishes. |
Thank you for the warm welcome.
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Big Hill
Hello Amanda.
I just joined the site, and was hopping around in the Intros. You were given a big hill to deal with , with your conditions. Which I have never heard of. But I guess it must be very tough on you, in many ways. I hope, like me you find info and bump into people in here who can help / understand your position. Sending kind regards. Kimberley. |
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