NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   New Member Introductions (https://www.neurotalk.org/new-member-introductions/)
-   -   Hello I am new (https://www.neurotalk.org/new-member-introductions/257992-hello-am.html)

BatBratMandy 10-25-2022 12:31 PM

Hello I am new
 
Hello everyone, my name is Amanda. I just joined. I am needing support for my health conditions. I have two rare neurological conditions one is Dystonia, the other is unknown neurological condition. I was born with both. I was diagnosed at the age of 13 and my conditions progressed quickly. By the time I was 15 I was unable to move. I got brain surgery for a deep brain stimulator implant in 2010. I got the opportunity to have 29 news station to do a story on my life to spread awareness for Dystonia and DBS. I later got diagnosed with autism and savant syndrome in 2014 by mental health professionals and my neurologist. I also was diagnosed with fibromyalgia and full body nerve damage.

Lara 10-25-2022 07:49 PM

Hi Mandy,
Welcome to the NeuroTalk Support Groups. :Wave-Hello:

If you need any help finding your way around please just let us know and I'm sure someone will help.
take care.

Kitt 10-26-2022 08:49 AM

Welcome BatBratMindy. :welcome_sign:

agate 10-26-2022 11:49 AM

Welcome, BatBratMindy!

So sorry you've had disabling conditions thrown at you but at least this is a place where you can visit for information and support.

You might find some useful posts in the Movement Disorders forum here. If you need help finding it, just speak up.:)

kiwi33 10-28-2022 07:28 PM

Welcome to the community.

I hope that other members here will offer you helpful ideas.

Best wishes.

BatBratMandy 11-12-2022 02:03 PM

Thank you for the warm welcome.

StarKing 12-26-2022 04:07 AM

Big Hill
 
Hello Amanda.

I just joined the site, and was hopping around in the Intros. You were given a big hill to deal with , with your conditions. Which I have never heard of.
But I guess it must be very tough on you, in many ways. I hope, like me you find info and bump into people in here who can help / understand your position. Sending kind regards. Kimberley.


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