re: pacing treatment . . .
 

This chart / table shows something interesting regarding pacer . . . :

[url=*** - Google Drive[/url]

Note except for the first period, fewer surgical patients died in the studies than non-surgical patients . . . were the studies 'frontloaded' with hospice patients?

". . . Hospice is provided for a person with a terminal illness whose doctor believes he or she has six months or less to live . . . "
What Are Palliative Care and Hospice Care? | National Institute on Aging

more detail soon.:confused:

Is stim harmful afterall? - Google Drive

(I do not know why the link didn't show correctly?) . . . try again.

Web page showing Hospice means no clinical trials
 

Web page showing Hospice means no clinical trials:
Advantages and Disadvantages of Hospice Care

(disadvantages section)

The specific clause:

"Participation in experimental treatments or clinical trials is not allowed because they are considered life-prolonging. In addition, other treatments or procedures considered life-prolonging nasogastric or "feeding" tube, might not be covered.5
Center for Hospice Care. Feeding, hydration, and hospice care."




Beef, there is no table or chart in the linked article. Is there a link WITHIN the article that would bring me to the table/chart?
-rb

The table's link is in the 10:11am post, rather than the article. It seems to be operational.

ALS 101 note
 

Good introductory research papers regarding Amyotrophic Lateral Sclerosis . . . relatively easy to read, many patients would likely understand and learn a lot from them.

Noah Lechtzin, August 2006
Respiratory Effects of Amyotrophic Lateral Sclerosis: Problems and Solutions | Respiratory Care (rcjournal.com)

Adriano Chiò, et alia, Oct-Dec 2009
Prognostic factors in ALS: A critical review - PubMed

Respiratory Effects of Amyotrophic Lateral Sclerosis: Problems and Solutions
 

Respiratory Effects of Amyotrophic Lateral Sclerosis: Problems and Solutions
https://rc.rcjournal.com/content/51/8/871.short

The 'internet' is giving me very hard time getting these simple journal paper references and narrow comments posted . . .

Two other journal papers ought be mentioned:

DiPALS (Sheffield) {free}
Just a moment...

RespiStimALS (Paris) {maybe $49, is available in some medical libraries}
Just a moment...

okay. so both of those studies you linked to suggest diaphragm pacing is NOT BENEFICIAL. Did you find these results surprising?

fuller set of reports and research status brief . . . :
 

06 December 2008
Onders, RP, et alia
Complete worldwide operative experience in laparoscopic diaphragm pacing: results and differences in spinal cord injured patients and amyotrophic lateral sclerosis patients
Complete worldwide operative experience in laparoscopic diaphragm pacing: results and differences in spinal cord injured patients and amyotrophic lateral sclerosis patients - PubMed

March, 2009 {$31.50?}
Onders, RP, et alia
Amyotrophic lateral sclerosis: the Midwestern surgical experience with the diaphragm pacing stimulation system shows that general anesthesia can be safely performed
Amyotrophic lateral sclerosis: the Midwestern surgical experience with the diaphragm pacing stimulation system shows that general anesthesia can be safely performed - PubMed

24 October 2011
Gonzalez-Bermejo, J, et alia
Diaphragm pacing improves sleep in patients with amyotrophic lateral sclerosis - PubMed

28 September 2011
Humanitarian Device Exemption (HDE) H100006
United States Food and Drug Administration
Humanitarian Device Exemption (HDE)
remains active to this day . . .

The study reports, above, show implied efficacy due improved patient survival medians . . . the following reports shows electromyogram intel reflecting synaptic reactivation subsequent to stimulation:

March 2015 {$31.50?}
Onders, RP, et alia
Identification of unexpected respiratory abnormalities in patients with amyotrophic lateral sclerosis through electromyographic analysis using intramuscular electrodes implanted for therapeutic diaphragmatic pacing
Identification of unexpected respiratory abnormalities in patients with amyotrophic lateral sclerosis through electromyographic analysis using intramuscular electrodes implanted for therapeutic diaphragmatic pacing - PubMed

. . . which leads us to 'lunatic ridge . . .' in the frontier of Amyotrophic Lateral Sclerosis.

And the table again:
https://tinyurl.com/ResapiD

shows slowing of deaths for surgical cohorts but increasing deaths for NiV cohort . . . in other words, after the bad start, even these studies developed affirming evidence of benefit . . . contravening the seeming adverse studies . . . leading to the question of what happened? The hospice issue shows many ineligible candidates were admitted to the study . . . but not why the same happened. Such is what I am working on in the present moment . . . .

The rare new case disclosures suggest patients are needlessly dying and scientific research is slowing . . . I am trying to correct the problems.