Starting Tysabri next week
 

Hi,

I've never participated in one of these groups before. I am starting Tysabri next week and would love to talk to anyone else who is taking it or who has tried it.

I am a mom, the owner of a growing business and I write novels on the side. My MS is not bad by the physical scale, but I'm losing my ability to focus, I'm tired all the time and I forget things. I have one numb hand am dizzy occasionally and sometimes find walking a bit of a challenge.

I've been taking Copaxone for two and a half years, It's probably holding back the disease, but I'm losing the ability to do the things I both love to and need to do--I'm especially concerned about my ability to care for my challenged daughter at a very critical time.

I had a real remission in the spring that lasted for about three months. Imagine! Three months of feeling good! I want more of that. Thus, my decision to try Tysabri.

Is anyone else out there taking Tysabri? How are you doing?

Again, this is my first time on any forum, so if there is already a current thread for Tysabri users, please tell me how to find it.

Katty

Hi Katty

I just wanted to welcome you and hope someone with experience on this medication will see this and have some info for you

Cheri

:Wave-Hello:Hello Katty and :welcome_sign:to NeuroTalk.

Sorry but I have not been on Tysabri nor any of the MS drugs but please feel free to join us over on the MS forum and someone there could probably answer questions you have about Tysabri.
http://neurotalk.psychcentral.com/forumdisplay.php?f=17

thanks for the welcome
 

Thanks for the welcome. I'm getting my first infusion tomorrow. I'm very hopeful.

I'll try again at the MS forum.

Katty

Katty,

Hello and welcome to NeuroTalk. There are a great number of members here to help one another as possible. Looking forward to seeing you around.

Darlene:hug:

Hi, Katty! :Wave-Hello: Welcome to NeuroTalk!

We have a good bunch in the MS forum as Snoopy mentioned, so, I'll see you over there!:)

Hi Katty,

I've never posted before either. My husband has had MS for about 10 years. He used Tysabri once 2 0r 3 years ago, just before it was pulled off the market. After only 1 dose, he noticed no change. He has the relapsing kind of ms, which is has now become active, so the doctor suggested tysabri again. I really hope for an improvement and am looking forward to hearing how you do on it. His infusion date is set for next Saturday.

Good Luck,
MS wife