NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- New Member Introductions (https://www.neurotalk.org/new-member-introductions/)

- - my intro (https://www.neurotalk.org/new-member-introductions/27925-intro.html)

idiana

09-12-2007 07:44 PM

my intro

1 Attachment(s)

I have an incredibly rare brain disease, neuro- amylodoma. I have to explain it to doctors sometimes. After full brain radiation, the progression stopped and I have been stable for two years coming up on three. I am left with stroke-like damage. I have left-sided weakness, foot-drop, and the near inability to use my left hand.

Just wanted to say hello. I'm going to look around and see what I can learn.

Alffe

09-12-2007 10:28 PM

Welcome to NeuroTalk idiana, I'm so glad the progression has stopped and you are stable. This is a great place to find and give support. :hug:

Darlene

09-13-2007 12:47 AM

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring members here willing to help each other as they are able. Again welcome, looking forward to seeing you around.

Darlene:hug:

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