NeuroTalk Support Groups - Hi from Chamfab

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- - Hi from Chamfab (https://www.neurotalk.org/new-member-introductions/28303-hi-chamfab.html)

I am impressed with information I have seen on this forum. I have had trigeminal neuralgia since 2002 but my latest flare up has now lasted one year of constant type 2 burning pain on the left side of my face from center part of my hair to my chin including half my tongue, nose, teeth and eye. I have used tegretol and it wore off after a few months. Now I am on 600 mg of lyrica and that too is starting to wear off. I have had a MRI and will find out about it this Thursday from a neurologist at Mt. Sinai Hospital. I am very sensitive to cold and am dreading fall and winter. Last winter was a nightmare with avoiding the cold air outside, cold air in grocery stores fridgerated areas and breezes from just walking down a hall. I have 3 idential fleece hats that tie under my chin, just leaving my eyes and nose exposed. Sometimes I have to sleep with this hat on due to cold air hitting my face. I can eat most of the time without pain, lucky me, but can't hug, talk on the phone on my left side etc.. I have long hair and when it touches my face I get pain, if I put it back, I get pain. Sometimes, just blinking my eye or moving it causes pain. Glad to hear I am not alone and have access to great information.
Gratefully yours,
Chamfab (Trish was taken)

Hello and Welcome,

Nice to meet you. :)
Our TN forum-
http://neurotalk.psychcentral.com/forumdisplay.php?f=26

Hi Chemfab, welcome to NT!

I see Jo has already given you the link you need, so I'll just say I hope you find NT to be as kind and helpful a place as I do. :grouphug:

Hi Chemfab and Welcome to NT. I hope you can get some help w/your pain... It sounds like you've really been suffering. I too, hate the cold and dread Winter... The cold just rips me up.

Take care and I'm glad you found us. Welcome again! :welcome_sign:

Hi Chemfab. Welcome to NeuroTalk. This is a very supportive and caring community. I'm so sorry for your problems but so glad you found this place.

:hug:

Chamfab,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can. Again welcome, looking forward to seeing you around.

Darlene:hug: