frustrated
 

Hello I am Pinkkribbon,

everything I am about to share is exactly what I have told 3 doctors (after a CT scan"normal", a Lumbar puncture"Normal" and 2 MRI's"one shows slight sinus desease and the other Normal") one doctor told me I was having an anxiety attack and precribed depression medication, one told me it was stress but admitted me to the hospital for 2 days and a neurologist who told me he is not sure what it is and that he called it an acute headache(exact words)at this point I am somewhat bitter of short answers from Doctors no communication and weird looks...

(FYI: I am sensitive to codine and I am an asthmatic these are in my records and on my hospital braclet as well the chalkboard in my room)and there is no chance I am pregnant and very long winded!:rolleyes:

So here is the story
Sunday:Two weeks ago while having sex with my husband I had a massive headache (the headache felt like head was getting jakhammeredon a scale of 1 to 10 It was about a 10/11)my nose started bleeding and me left leg started going numb, my husband rushed me to the ER by the time I got there I wa throwing up enter doctor number 1:rolleyes: anxiety attack huh! had the CT scan and the spinal tap both normal. I left the hospital and with a shot of morphine for the pain. and a prescription for alprazphlam and percoset

I went home and rested the entire day Monday not moving too much and very nauseated, that night I took a shower and out of the blue BANG another headache I was doing nothing but standing in the warm water this one now stronger that the first, I layed down until I could get to the health care clinic and speak to a primary.

Tuesday: (The NP tried; she was the only one that trully seemed concerned.) she gave me a shot imatrex...BAD MOVE, it felt like my head and face was burning and the headache got worse, I was sent to MRI from there (normal) went back home with a prescription for Zomig took one and was in really bad pain for over 3 hours after taking it (burning feeling is back) went to bed and the nausea feeling returned.

Wednesday morning rudely awakened with the need to vomit ran to the bathroom and Bang Brain blast number 3
this one worse than the last 2 now I am rushed back to the ER, the attending doctor wants to do a lumbar puncture fill, (by now I am very light sensitive, nauseated, weak and sound sensitive) she says it is a stress response "REALLY!":eek: but admits me to the hospital with a bad headache, I am put in room with a 93 year old woman who is hard of hearing, it get worse she has a large family who comes to visit which included a almost 2 year old toddler who is learning her ABC's. headache pain with morphine was a comfortable 6/7, I was sent home with prescriptions for ibuprophin 600 reglan, my albuterol, prevasid(heartburn), tylenol 3 and percoset:confused:


After some serious complaining by my family, I was moved the next day spent the night and was released with an acute headache pain level 5/6 and I have been at this level for going on week 3.

I tried to return to work last week thinking I was feeling better and I am used to the pain at a 5/6 level after taking IB 600 and returned home mid shift. I am the overnight night manager at a 4 diamond hotel. and pretty much do paper work lots of paper work but I need to be able to focus and with my headache I am not able to do so, I am extremely frustrated tired of these headaches that do not leave, tired of the all day vomit sessions and people saying I don't know! tired of the sore back and limbs and feeling that I have been running a cheese grater on my arms and legs tired of my legs going numb, for a few mins at a time.

if everhing is normal with my test how come all this mess.

I WANT MY LIFE BACK...

Hopfully someone can give me an idea as to what actions I can take now I have an appointment in a few weeks with a new neurologist (earliest I could get is a month away)

First let me say, "I am soooo sorry" that you are going through all this at once.

I have a few things I want to mention...

First re:the headache/nosebleed. I have chronic sinusitis and w/that I have had headaches and nosebleeds without any notice. I did have sinus surgery on the frontal sinuses, but have been told that I need to have another surgery on both the frontal and maxillary sinuses(maxillary are above the eyes, where headaches usually begin until they completely encompass your whole head/neck and face). So that might be why one of your MRI showed "sinus disease".

Secondly, I also go through the burning sensations on my body. Sometimes to the point of me not being able to wear clothes. I am very sensitive to temperature, so I have to take a lukewarm/cool shower or bath, depending on how sensitive my skin is and whether the beating of the shower water hurts or not.

Thirdly, Don't be discouraged because of the number of doctors you have to see. I have went to 5 different neurologist. Three are in the same practice - one working on my neuro problems, one working on headaches and one working on seizures.

Also, they at first told me that my problems were psychosomatic(stress related and "all in my head"). But I pushed ahead until someone told me what was wrong. I know my body and it was telling me that something is wrong. Even now, I haven't received the answers on my neuro problem. Numbness, tingling, twitching, memory problems, focusing problems, etc.

So please continue to search. You know your body, something is telling you seek help. DON'T GIVE UP!

We will be here if you need us.

M

That is actually very good to hear, this has been very frustrating to say the least things just keep escalating as far as my comfort level, Thank You for your reply someone going through what I am is what I am looking for, I have has SOOOOO many opinions from uneducated people(non doctors or anyone NOT going through what I am) offering thier opnions and UGHHHHH! Thank You