Porkette...? for you...
 

I noticed in another post, you talked about having surgery for your seizures as well as all the other test i.e. VEEG and wada testing.

My father had surgery done in April of 2007. He was having anywhere between 15-30 seizures a day/night. We had all the other test done. They "decided" which side of the brain the seizures were coming from and preformed the frontal lobectomy. However, he has had 2 seizures since then and his memory loss has increased so much that I am really concerned. I know the 2 seizures down from what he was having is not bad, I just wasn't sure whether the surgery was a sure fire thing or just something that decreases seizure activity.

What has your experience been? Did you have the same or similiar surgery as my father? Do you have memory problems (before and after surgery)? How are you doing now? How long has it been since your surgery?

I hope you are doing better and that life isn't giving you a hard time. Know that I am thinking of you and sending best wishes your way.

M

Hi,
I had 2 brain surgeries the first was a veeg where they put 7 depth electrodes directly on my brain to pinpoint the exact locations of where the sz. were coming from. My second surgery was a right temporal lobectomy where my surgeon used ultra sound to destroy 75% of the scar tissue on the RTL and he removed all of the right hippocampus because it became hard and shrunk from yrs. of sz. This is one area where a persons learning and memory is.

I had my last surgery in the summer of 1994 and my surgeon told me that the surgery would only reduce my sz. and that it would take 6 months for a full recovery and during this time I could have sz. because of the nerves healing from the surgery. Since the surgery my short term memory has gotten really bad but that's all do to the removal of the hippocampus. Before surgery my memory was a lot better and my spelling was really good also.
Before surgery I would average 300 sz. a yr. and then after surgery I had only 68 sz. in a yr. and things were going great but then my parents got a divorce after being together for over 41 yrs. and the stress and rejection I have received from them has caused my sz. to get worse so far this yr. I've had 100 sz. and when they first broke up I had 171 sz. I'm now having grand mal and I've had a few status sz. so all of the surgery was a waste of time and money thanks to my parents. I haven't seen my father in over 2 yrs. and my mother wants nothing to do with me anymore because my epi told me that it was my parents break up that caused more brain damage. I'm at the end of my rope and about ready to give up on life. I have tried so many different things for my parents to accept me but they won't all because of my E. I sure hope things are better for your father and that you have a great relationship. I'm sorry this is so negative but I'm just being honest stress can mess a person up greatly! Here's wishing you and your family only the best and May God Bless You!

Sue

Oh dear Sue, I am so sorry that you have that added stress in your life. One thing I have learned about rejection is that sometimes we have to accept it for what it is. Your mom has the problem, the problem is not you. It is more likely that she either just doesn't know how to deal with the fact that the stress of the divorce caused you to go back to seizing or she is too selfish to acknowledge that that is a reasonable fact. She may be in denial that her divorce can cause such emotional stress on another person and therefore has decided not to have a relationship with you. Point being, although she is your mom, just like anyone else that we deem negative in our life, we must try to move on in a healthy way. My mother and I don't get along either, she has emphysema and COPD. I live 7hrs from her, but try to call and check on her as often as possible. She of course will deny this to anyone who talks to her. I am the selfish child who doesn't want anything to do with her. That was the way for sometime. My mom was not a good mother growing up. She allowed me to be physically, sexually and emotionally abused. Her doing most of the emotional abuse. I will be the first to say, that a mother/child bond is so strong that we need them to recognize our thoughts and feelings and we forget to take care of ourselves. Don't allow your mom to dictate how you live, because even her being absent in your life is giving you undue stress.
Take care of yourself.

I hope I didn't say anything to upset you. That was not my intention. Please forgive me if I did.

Best wishes and remember that our true parent, Our Father, loves us indefinitely.

M

:(:(:( Could I join in here and say that I know how you feel -- I know what you have gone through?
I did not see my father the last two years of his life and he lived just 25 miles away :( Now I simply don't care if I see mom or not.
But, OH - I understand how that hurts.
:grouphug:

Hi M,
I'm sorry to have dumped all my problems on you and I want you to know I'm very sorry!
It sounds like we have a bit in common with our family life and I want you to know that you haven't upset me in anyway.
I hope your Dad is doing well and tell him to stay away from stress and any emotional matters because it can cause more sz. May God Bless You and Be With You!

Sue