Infor On TBI
 

Hi my name is Jeff, new to this forum and I'm looking for information on TBI. :)

Hi Jeff. I am quite new here, but I have read just about everything that everybody had posted and a lot of the recommended links as well. I have learnt a lot in a very short time. Well as much as a person with a learning disability can digest. Look forward to hearing your story.

Learning my way around
 

To Lucy THANK YOU for the post. I was hit buy a drunk driver 4 year ago and experinced TBI and PCS as a result of the truma to the head. No fun losing your idenity and your ability to work or function. It's been a long slow healing process. I'm improving slowly and now it's time to find other people who have had the same type of truma so that I can learn to function as the person a I am today. I'm strating to understand the system of his disorder and looking for new ways to manage there effects on my personality.I do understand that the neuro transmitters in the brain will create new path ways to process information and that is kind of where I'm at today creating the new path ways in the brain

Unfortently people who do not or have not experinced a truma to the brain do not understand so I'm having to learn new ways to communacate and that why I'm here, Jeffn

Jeffn,
How much better are you in 4 years and what neurological deficits do you still have now? Are you able to live a pretty good existance or are you very challenged? Tell us more!

Nancy F
 

Thank you for the replie Nancy, yes there are still challenges as each brain is different and each injury is also different and it is my understand that the brain well heal it self in it's own time and that it is a slow process.

Some of the symptoms I deal with is I still get upset and angery over non sence that would have never upset me before I was injuried. This is some thing I will have to learn to manage. I think I read in this forum about taking a time out when this happens so I'm implementing that into my healing process.

Last year I went through some very difficult migrain headaches for almost a year no fun. I take imitrex for the headacches and it seem to help.

Stress seems to bring on the headaches so I try to manage that as best I can some days you win and some days you don't.

My brain still flat lines where I can not process information in of out and I still have lag times between my long term memory and the cognitive part of my thinking processes.

I have to accept the reality that that old self is gone and work on rebuilding the new self. I believe that the brain will heal it's self but it take time and we may have to learn how to do life a little differently then before.

Thankful to be alive and yes there are day's that are hard but this to shall pass . I'm trying to learn and grow so that I can function as best I can each day. Some day's I have to ask for help and there seems to be someone willing to help you to get back on your feet again. Jeff

PS I think I read a post in regards to your son ?

Jeff

You are doing lots it sounds like. I think you are doing wonderfully.

I have post concussion syndrome. And have just past my first year.

I also have abnormalities in my brain that I had diagnosed in May
that I have had all my life. So I'm retraining my brain how to do
lots of things so that I wont fall as much, and will learn how to
do many things not to be a hazard to myself. I have some cognitive
things that I still have trouble with too. But thankfully many of
them get help from my Physical therapy.

I've also had to stop my PT at present to deal with my shoulder and
feet. Seems if its not one thing its another. I just seem to share with
my whole body.

Donna

Good Evening Donna
 

Thank you for your reply Donna Tb and PCS are invisible injuries and that make them hard to deal with and even talk about in our society. I just finished reading a post in the Chorionic pain Chorionic on 101 ideas to empower person in pain lot of good web site to check out they maybe helpful.

Don't ever give up the brain is an incredible organ and it can rebuild it's self. God created it that way. Think about it every breath one takes is ordered by the brain.

Take Care JEFF


PS I use sticty notes alot very helpful and you can post them anywhere

Jeff you are so right about having to learn a new way to communicate. I have such a hard time understanding things people say...can't figure out what they mean and words, especially, if they use a word that has more than one meaning. Goodness I see what they are saying in a competely different picture and it is hard for me catch on! My PCS is mild. I am better now, than right after the wreck by far..yet some of this stuff just want go away and I think I will always be like this. That will be OK though...if I can just learn how to handle it. At my age everyone thinks I have Alzheimers. :eek: Gaye :)

Thank you for the reply
 

To Froglady, Thanks for the reply, One of the tools I use is I write everything down. I like sticky notes and 3x5 cards. When I have to go talk to the mean people at Social Security Office I alway take a friend and I do not make important deciesions until I talk it over with someone. I set up a master mind group of 4 men and 1 women for feed back on dealing with people unfortunately some people are not very nice and will try to take advange of me because I can't think fast enough to call them on there BS Another problem withTBi is that I have tunnel vision. I have to stay focused on 1 task or it doesn't get done.

Life is a game and should be treated as such.

Take care get well and don't give up Jeff:)

Jeffn,
I'm glad you have been reading alot of posts. I have learned alot by doing that and I am understanding alot more about PCS. I think we can learn more here than anywhere else. You have a great positive attitude and I think you are doing a great job problem solving your issues.
Nancy f