NeuroTalk Support Groups - BoogaBear...The Traveling Epilepsy Awareness Bear

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Epilepsy (https://www.neurotalk.org/epilepsy/)

- - BoogaBear...The Traveling Epilepsy Awareness Bear (https://www.neurotalk.org/epilepsy/3059-boogabear-traveling-epilepsy-awareness-bear.html)

BoogaBear...The Traveling Epilepsy Awareness Bear

I would like to take a few moments of your time to tell you who I am...

My name is BOOGABEAR.
BoogaBear03@sbcglobal.net

I am known as the traveling epilepsy awareness bear.After the passing of Danny Wader Jr. His mom and dad created Rocking for Epilepsy an organization to raise funds and awareness for epilepsy.

In a short six month time the two of them organized the 1st annual epilepsy walk in Davenport, Iowa. It was beary great they had over 300 walkers. and aised 10,000 for the epilepsy foundation.

On June 14, 2003(at the 2nd annual walk) I was introduced.

On July 1, 2003 I started my travels to visit adults and children with epilepsy, along with me I bring my journal for your thoughts and a album to add photos to. And the most important I wear my Medic Alert bracelet and bring my meds with me.

I stay with the host family for 7-10 days and ask them to promise they bring me every where with them, We can have fun explaining to others who I am and why I am traveling.

Since July 1,2003 I have made it to 33 different states and over 92 homes. I have made alot of new friends. I don't just visit and forget you. I do have my beary own email and hope we can stay in touch so I know how you are doing.

My goal is to visit every state and I am half way there. Please help me by letting me visit with you and your family.

Visiting Danny's Grave
http://ephotohut.com/images/HW/tn7.jpg

Reading up on Epilepsy
http://ephotohut.com/images/HW/tnbooga17.jpg

Visiting the Doctor
http://ephotohut.com/images/HW/tnbooga.jpg

This is such of a great idea Jen. Has he been to Texas yet?

Yes he has but loves to visit the same place twice or even three times if needed. He loves to educate about Epilepsy

hugs

:D :D :D bump :D :D :D

Since Michael is having seizures again and will visit the Pedi Epileptologist in November, why don't you send it to him. Thanks dearie!

You will need to email him at his email addy above...

Hugs

My son has Epilepsy

Hi, my name is Tonya and my son is 9 years old and he has Epilepsy. He has =
been seizure free for almost 4 years, but he has been through so much in hi=
s short life. He was born with Epilepsy, but wasn't diagnosed till he was 4=
and half. He has had 4 brain surgeries, a VNS implanted and been on severa=
l Epilepsy medicine. Anyway the reason I was writing I seen your website wh=
en I was browsing the net trying to figure out something to do for Purple d=
ay this year and working on the =A0third annual Epilepsy walk we have in ho=
nor of my son. The "Rev 4 Chev" Epilepsy walk I donate to different places =
here in Oklahoma. Oklahoma doesn't have support for Epilepsy, the Epilepsy =
foundation doesn't even sponsor Oklahoma, so I have started the annual Epil=
epsy walk. I was wondering what I had to do to get you to come to our walk =
in the end of May or the first of June? I really wont to spread awareness a=
bout Epilepsy and it's hard when there is no help here in Oklahoma.
Please let me know something

Hello and welcome, :Wave-Hello: happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, welcome to a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

I tried to send a email to the above email address, but it would let me send one.

Welcome to NeuroTalk:

Please notice that this thread is over 4 yrs old. Alot can change on the internet in 4 yrs.