Off Topic: This is something I have to share
 

I'm quite down physically and mentally lately,
Someone on the Sjogren's forum posted this last night and it's so spot on, I wanted to share. It's probably not appropriate but you don't have to read it if you don't want to:

"I feel I am ready
to say it out loud,
to stop being stubborn
and quit being proud.

It's finally hit me
that something's not right,
I've been fighting and battling
with all of my might.

A thief has come calling
and taken me to hell,
has robbed all my essence
and left just a shell.

He stole all the fun bits
and trashed what was left,
what he did to me
was not just a theft.

The days I remember
being bright and pain free,
of smiling and laughing
and glad to be me.

I'm tired and sad
depressed and quite down,
I'm feeling real lonely
even though help's around.

So now I must grieve
for the loss of my past,
relax and accept
some things never last.

And when I return
to this life I have now,
I know I will cope
and survive it somehow.

So wait for me friend
whilst I take time for me,
and when I return
much stronger I'll be.

From Mim xxx"

Billye

Beautifully said Billye:

Thanks for sharing.

Melody

Thank you
 

Billye,
A truly lovely sentiment and probably, truth be known, once that many of us can or have shared.

It does brighten an otherwise somber outlook!

Alkymst

I have been there! Thanks for sharing.

Thank you for that. I'm sorry your having a ruff time. I don't know if you go to the bookstore but in the recovery section they have really good daily affirmation books. I really think they help. Sending hugs

Hi Billye
 

Reading the poem really makes me understand the suffering you have endured. You are such a kind person who shares so much with everyone,and it's not right that you have gone through so much rubbish.

So many people can relate to this poem. I myself feel like I have been through entirelt too much too. This PN is a form of torture as far as I am concerned.Torture everyday both emotionally and physically. But somehow we soldier on.

I really really hope that you are not feeling so down, and if you are that it is very short lived.

Thank you for sharing the poem.:)

Emotional now
 

I've been quite emotional the last few days. I am trapped in the house and suffering quite badly. I don't know if it's another break or if the inflammation is rampant again. I'm due to go in on Tuesday for another monitoring of my Hemoglobin and Hemoticrit. I am also to have blood drawn to monitor sed rate, C-Reactive Protein and another inflammation marker I can't remember right now. So we should have some answers soon. But I'm finding I have no relief from the pain except for sleep (sleep meds are taken). I've been on crutches the last few days because I can't put my weight on my legs. It's not the neuropathy, it's more in the joints. So I was feeling really sorry for myself when this little poem was posted on the Sjogren's forum. It provided me with the hysterical crying jag I needed. I just needed some release. I don't usually let myself release with tears because I spend days eyewise recovering. So everything was all pent up inside.

I thank you all for replying and I hope the little verse helped someone. It was from another Sjogren's patient who suffers pretty badly. I'll try not to continue my pity party. :p

Billye

Thank you
 

Having Sj Syndrome myself,it just get's harder,well that look Drs. get when they look in your mouth,like they never seen a DRY mouth like that before.
Are being along when you hurt is so much well it is scarcy,we don't want to go through another another painfull broken bone,our poor dry eyes. Bless
you honey and that poem will be passed on. :grouphug::grouphug: Sue

I am so sorry to read that you suffering so much Billye, i do hope they can find out why this is happening, is there anyway your GP can adjust your medications to at least give you some relief, until they can sort this out for you ?

Brian :)

And--
 

--don't worry about starting a pity party--most of us have from time to time; it's practically an institution at these boards. :rolleyes:

If I'm understanding you correctly--and tell me if I'm not--it seems as if your inflammatory processes are more rheumatoid at this point than anything else, whacking your bones and joints; have you been on any of the more recent RA meds, or are they contraindicated with the concurrent Sjogren's? (I keep thinking there must be some combo that hasn't been tried yet that does NOT involve bone-attacking steroids, which would probably only make your bone/joint issues worse . . .though you may have been through a lot of them . . .the problem with so many immune-modulators is that they produce their own problems one then has to take compensatory stuff for, and by the time one is taking mutliple substances one doesn't know where the "original" conditions end and the substance-induced ones begin . . . )