Spheramine
 

Hello ! I am a new member. I would like to learn more about PD new treatment Spheramine. Phase II trial is being performed currently. About 70 PD patients are involved. Does anybody know a PD patient who took part in this trial (Phase II) ? Did he/she get a substantial benefit ? The first six patients of Phase I trial had quite an impressive improvement in their motor function.
Thank you in advance for any information you could provide.
Caroline

My mother was a phase IIb patient. At the time of the surgery she could drive, walk, and have relationships with her family and friends. Within months of the surgery she was in a wheelchair, in a nursing home, in restraints due to the immediate onset of severe hallucinations, imbalance, thought disorder and a horrible decline in mobility.

There are also some patients here in this board who were better after spheramine. Sadly, my mother was horribly affected.

Hi Caroline and Welcome to NeuroTalk. Here is the link to our PD forum..
http://neurotalk.psychcentral.com/forumdisplay.php?f=34

It's a very active forum and you'll find a lot of good support there. :)

Hi, Caroline! :Wave-Hello: Welcome to NeuroTalk!

Feel free to join in anywhere and let us know if we can help you navigate the forums.

See you out there! :)

Caroline,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene:hug: