dsue
 

this is the first time i have ever used an online forum. i was diagnosed with chiari malformation 1 with syringomyelia on may15 07. i had a craniectomy on june 5 07. i am still in disbelief of my situation. i started out with pain in my left chest then down my arm and into my back. i finally found a dr. who listened to my symptoms. he ordered an mri thinking i may have a herniated disc. but when the results came back he as well as i was surprised at the least. post-op i still have the pain with no relief. i am currently on lyrica and several other pain meds. i've been told to be patient that the pain with go away, i just need time to heal. i want to believe i am getting the best care but am not convinced the pain is irreversable. please send comments and any information that may ease my worries as i wait.

hello d'sue

I am so sorry for all you have been suffering

we do have a forum here for chiari malformation where you may be able to find some useful information.
http://neurotalk.psychcentral.com/forumdisplay.php?f=71

we also have a chronic pain forum, one for medications discussions, and others too that may meet your needs
here's the main index to all our forums if you need it:
http://neurotalk.psychcentral.com/index

I do hope you will find a doctor who can correctly determine why you are suffering this pain and be able to help you. Maybe other members here can help point you in the right direction. I do hope so.

welcome to the NeuroTalk community

Cheri

Dsue,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

I see Chemar has given you a link to get started.

Again welcome, looking forward to seeing you around.

Darlene:hug:

Hi, Dsue! :Wave-Hello: Welcome to NeuroTalk!

Hang in there, answers will come.:)