MG or NOT
 

The doctors say that I have MG but for some reason I cant get it through my thick skull, I keep looking up my symptoms , anything that will give me a clue that I may have something else weather it be allergies or whatever ,the only thing that I know for sure is that my arms get tired after just folding a few towels ,there are times when my eyes make me look like I have not slept in days, cant keep them open ,and im not really tired, I have swallowing problems I now have a feeding tube , and yet I still look for something else thats wrong with me maybe anemia or something so simple that the doctors are just missing it and it will all go away I guess im just crazy . I have taken 2 tensilon test one was positive and one was negative , I have taken a CT scan for thymoma and that was negative for antibodies had emg and all my doctor said is that it showed that I have a muscle disease I take synthroid so I thought that maybe my thyroid was off but it is controlled with meds according to the blood test so I am either crazy or in denial and I either have MG or I don’t :eek:

Littlewish, just be glad the doctors are giving you a diagnosis. MG is such an individual disease, and run of the mill neurologists are so uneducated about it, that many MGers go for years without a diagnosis.
What you have descirbed sounds to me like MG. Droopy eyes, swallowing problems, positive Tensilon. Accept it and get on with the job of learning to live with it. What meds have they decided to put you on?
I take only Mestinon, 60 mg every 3 to 4 hours. I also need Synthroid for an underactive thyroid. I used to have Graves' Disease, and had a thyroidectomy and removal of a goiter, and after many years, now have underactive thyroid.
By the way, we MGers now have our own Myasthenia Gravis forum. Feel free to post there.

im on mestinon 60mg 5 times a day
i also take 40mg of predisone and now my neuro put me on cyclosporine and i also take synthroid ,but because of the predisone i have diabetes i hope that i can get off of the predisone soon maybe i wont be so grumpy ,this predisone makes me crazy thanks for answering , all my family lives in another state sometimes i just feel so alone

One of my neuros once tried me on Dexamethasone, which is something like Prednisone, and I had a terrible reaction to it. It made the MG worse to the point of putting me in intensive care. My breathing just totally tanked. Of course, not all MGers get such a bad reaction, but it's not unusual for the MG to initially get worse. In the short time I was on Dexamethasone, I had just about every side effect known to man. I really sympathize with your desire to get off the Pred. I remember when he was weaning me off the Dex, I had 2 "episodes" when I couldn't raise my hand without looking at it to get the visual clue of which way was up. It was crazy and scary! If someone came at me now with a corticosteroid, I think I'd run like mad in the opposite dirrection. :D
Feel free to PM me any time you want!!