Thankyou for this community!
 

First a little introduction I guess would be good before I jump off complaining and asking for help and information, eh? My name is Dawn (Screen name Morning Broken, cute huh? LOL). I am 37 years old, and mother to two beautiful children Kristofer (13) and Kathryn (4), and have a wonderful hardworking hubby, Michael. I am a survivor of Chiari Type 1 Malformation surgery in June of 2000. My last post-op MRI was in Nov./Dec. of 2001, during which all was fine and right with the world.

Today I had my first MRI since 2001, to evaluate the Chiari situation due to recent, semi-gradual vision loss over the past year and a half, at the request of my opthamologist. My "psychosis" has caused me to travel all over the web, LOL. Just the thought of the possibility of the chiari comming back, or getting worse, or whatever is horribly frightening to my husband, my son, and myself. (Daughter is "post-chiari", our miracle baby you could say, so she doesnt know what might be happening).

I'm gonna close now, but just wanted to say thankyou to the group moderators for maintaining this site, and to appologize before hand for all the support I might need.

Hi Dawn and let me welcome you to NeuroTalk. I see you have found your way to our Chiari Forum. I'm so glad you've joined us although I'm sorry you have had such a "trial by fire". Warm hugs.

Hi, Dawn! :Wave-Hello: Welcome to NeuroTalk!

You seem to have a good attitude about all this and that will make all the difference. Feel free to join in anywhere and we'll see you out there.:)

Thankyou for your welcomes! Actually, I dont feel that my attitude is all that good. I spend days in funks, depression, anxiety, etc. But I guess we all do what we have to do, and the most important thing I have right now to do is raise my kiddos. The attitude bleeds over to them, ya know? Hubby tells me that its OK to laugh when you really wanna just sit down and cry. He "allows" me one pitty party per day, cause he knows its stressful just keeping a good face for the kids.

I feel lucky in the fact that many a day, we have the "pitty party" together, after the kiddos have gone to bed. I have a great support system in place, best friend, sister-in-law, hubby, kiddos, mother and father, and my father-in-law. But it is just such a relief to have this community as well, cause let's face it, I know they care, and their with me every step of the way, but there's really no way they can understand on a day to day basis what its like living with ACM, myofascial pain, chronic fatigue, anxiety, and the general feeling that I'm basically failing as a mother. (They tell me I'm not, but they dont have to deal with a 4 year old wanting to walk down to the park, but being the one having to say, "Sorry, but mama doesnt feel like it today", "Sorry mama has a bad headache today", "Sorry, mama's hurting today", "Sorry mama can read you a story because I cant see the words", and all the other things that go along with all of this. *sighs*

See, told ya, bad attitude LOL

Dawn,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

I bet you are a very good loving mom and they know it. In the raising of my kids at times I felt sometimes the way you do, but something keep me going one day at a time. My feeling about my kids was as long as I hug them everything was fine. Today I guess I did hug them right, for they are here when I need them to, even over a phone. Both of which hav kids that love just as much. Hang in there.

Again welcome, looking forward to seeing you around.

Darlene:hug:

Hi and welcome Dawn ,I like your attitute as well...I can remember feeling the way you do about the Kids,but it sounds like you and Hubbyy are doing,
a good job...I also like the way you wander around,a good way to learn
about others....Sue

Sorry about laughing... but.....
 

ROTFL @ MaryAnn!!!

Oh, honey, that little sig line of yours just made my day this morning. I had actually just finished having a grumbling fit to myself about crackling and stiffness, while fixing my daughter her breakfast (which was a bowl of Rice Crispies.... seriously!!!)

Ya made me change my mood thingie to "inspired", it was just a real load lightener. Thank you so much sweetie!!!

Thankyou all for your welcomes as well!!!