Hi, I am NEW...sorta.
 

I used to be a part of the Braintalk forum many years ago when I was doing with "Multiple Sclerosis". Well, turns out I did not have MS. After several years of taking Copaxone and the Rebif, I found someone on another forum (Rose) who suggested B12 deficiency. I got checked and guess what, I was extremely deficient. My blood test came back 100. The neuro did not believe it and had me retested. This time the test came back 86. Neurologist decided I had both MS and B12 deficiency and continued pushine the drugs.

I have severe allergic reactions to the MS drugs and severe depression. After several trips to the ER because my eyes, lips, hands, tongue, etc. swelled up I decided I had enough. I asked for alternatives. He had none to offer me. So I went to a MS specialist.

One look at my chart and the specialist questioned my MS diagnosis. He sent me off for another spinal, MRI and blood tests. Conclusion...no MS.

At some point I was also diagnosed with Crohn's disease. I was on lots of meds for it also, but have found that changing my diet provides a much better solution.

I continue to give myself B12 once a month and continue to be MUCH better than I ever was. My husband tells people that he married one person and a year later she started taking B12 and turned into a completely different person.

The MS Specialist sent me to an immunologist. He was not able to pinpoint exactly what is happening with me (like many of you seem to have heard also). But he did tell me something that has helped me... he said I definately have an autoimmune problem, but that I needed to stop focusing on naming it or fitting it into a specific category. Instead he told me to focus on living the best life I can.

I have done that. For me that has meant, less doctors and less drugs. I found that if I took the drugs, they would maybe resolve one issue, but would cause another issue (fatigue, depression, etc).

Oh...btw, a little about me: I am 32, married for 3 years. My husband is 27. We have 2 Yorkshire Terriers. We recently purchased a house and decided to start trying to have a child.

I look forward to chatting with all of you.

M

Good to see you posting here margaritachic and I look forward to us sharing info on Crohn's disease.......my son has only been dx this summer tho has likely had it active for 1+ years..........we too had mis diagnosis clouding issues

I have been hearing some pretty remarkable comments about the Crohn's remedies at www.nativeremedies.com and am looking into those at present, although my son already takes a number of the ingredients in those already as separate supplements.

again, welcome :)

Chemar! Nice to hear from you again. I ordered the book you suggested, The Maker's Diet. I cannot wait until it arrives.

Has your son had his B12 checked? Does he take injections of B12? I have heard that lots of people with Crohn's are deficient.

This forum seems slow. I would love to chat with more people with Crohn's. Any suggestions on other boards I should visit?

My husband and I are trying to get pregnant and I would really like to talk to other women who have conceived and have Crohn's.

Have a great day.

Marla