NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Thanks Sandel (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/32800-thanks-sandel.html)

theoneRogue420

11-26-2007 01:48 PM

Thanks Sandel

Sandel, I just wanted to let you know how much I appreciate all the effort you put forth in keeping us updated on the most recent issues facing us. I have come to rely on you more and more as I get sicker, lol. You're great at getting me interested in a subject, and then doing more research of my own after reading your articles.

Thanks, Hon... your efforts mean a lot to me.

:hug: Rogue

ali12

11-26-2007 01:58 PM

Thanks Sandel

Sandel,
I totally agree with what Rogue is saying - you are great and really supportive. I find all of your articles/links etc very interesting and helpful
Thanks for everything
((HUGS))
Love
Alison
PS: I hope you are having low pain days

Sandel

11-27-2007 03:07 AM

Aww gawsh thanks guys.. it disteracts me good and I try find stuff thats relevent you others needs as I know it is hard for some, if there is anything particular that will help please PM me I don't mind as I say it distracts me from pain.. the deeper I go the less I know.

It is very nice to know it is apreciated though sometimes I think it may be anoying.. but I post what may help from posts I read.. sadly there are so many areas that research is lacking, I can tell when I look for something and it's like a big gap in the information stream.

Be well :grouphug:
Sandra

ali12

11-27-2007 05:58 AM

Hi Sandel,

I just want you to know that I am ever so grateful for what you are doing, I find some of the articles really interesting. It is hard for anyone coping with RSD, but it's even harder for me because of my age. I just feel like I don't have a child hood. Most of my friends are great, but you do get a few that don't understand how RSD affects me and how bad it is. When I was diagnosed with RSD I found out who my true friends are.
Sandel, I don't find any of your articles/research etc annoying, I am glad that you have found something that distracts you from the pain. I like crafting, but it doesn't seem to make the pain go away a bit:mad:
Take care and thanks for listening
Love
ALISON

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