Sjorgens Sarcoid
 

Does anyone know of a good site about sjorgens and/or a site to talk to people who know about sjorgens? I know someone who needs information about their sjorgens causing sarcoid which is leading to blindness. I believe Silver Lady runs a site but i dont know what it is.

Hey Joe
 

Billye is on a site but lost the e-mail adress when my other one crashed.
Does she live in New Your area...I will look are put word out to some
people who are in her area,wouldn't hurt to pm her.I have S.S but not
the same thing she has,but we never know...If we can't find one that she like's there's more of us on this site everyday.. Sue

He is in New York has been diagnosed with sjorgens and now has sarcoidosis in the eyes, im not sure how they are related and neither is he.

there is a sarcoid forum...
 

based on a theory called the Marshall Protocol. (for sarcoid)

You might want to check it out. There are medical posts there.

http://www.marshallprotocol.com/

It has stood the test of time, but is still controversial.

Try this site...says local support groups.

http://www.sjogrens.org/support/

Are you sure your not thinking of Sarcordosis it affects the lungs,you can
can have a cough,it also effects the eyes so on. The site C gave you
is the one Billye uses i think... Good luck Joe and friend.. Sue

Sjogren's Forum
 

Sorry folks,
Long doctor's appt. yesterday.

Hey Joe,
The Sjogren's forum is www.sjogrensworld.org

Very knowledgeable people there.

Billye

http://rheumatology.oxfordjournals.o.../full/40/1/113

http://ard.bmj.com/cgi/content/abstract/49/6/407

http://www.endocrine-abstracts.org/e.../ea0005p35.htm

Along the same lines as Sue said, there is also an entity called 'carcinoid'. Carcinoid Syndrome or Carcinoid tumors are other interesting topics.

The last website has some interesting info on hypervitaminosis of Vitamin D, which is new info to me. All 3 abstracts concern males, who seldom get the diagnosis of Sjogren's. Billye would probably have the exact stats, but, I belive the incidence is one male to 5 females. Sometimes the gender bias is due to physicians not considering a disease due to old presumptions.

thank you cyclelops
by the way you are very funny

:hug: You don't live with me!! You might have a different opinion if you were immersed in me 24/7. My husband seems to really love his job lately.:D

Joe check out my new thread on neuropathy....that might help too.