I've been called one in a million...but???
 

Hi there all,
It's been so long since I've been to visit here and empathize with all of our situations. I apologize for the unavoidable break in conversation.

My Mom of 86 has come to live with my husband and myself since Aug. We've run around a lot to doctors, etc. but the holidays will be nice to have her here as it had been 9 years since we saw each other - though we spoke every day on the phone. She tells everyone, I'm physically fine, I just can't walk or see! She's a card!

I'm in a very confusing place right now. I'll try to keep this as short as possible. Back in mid-August I was told that the painful lumps on the top of my feet were bone spurs - went to foot dr. (who knew all about RSD) and proceeded to give me cortisone shots in both feet. Solution for most, for me - they first were itchy; then swollen, then blistered, painful - saw him every day - after day 4 went to ER - his recommendation as he didn't have a clue what went on.(neither did the ER) I asked him and my family dr. if they thought it could be a traveling of the RSD from my left hand/arm to the feet. They both said - it was not presenting like RSD usually does. Now it is four months later and I have a LOT of pain - my left hip and down to (some days) my shin - the toes pretty much hurt every night both feet - my lower back aches after just bending over for a SHORT time; my right knee somedays feels like it is coming off the knee cap. Shoulders and neck are sore; arms and hands feel useless. I feel like an old person who can barely keep up with myself!!!

So my first question I suppose is: after reading many of your stories, does or can RSD travel like this and does it sound like anyone else? My doc doesn't feel I should go back to the pain dr. yet - however, I believe he would support me if I felt it necessary. The foot doctor just calls the whole thing bizzare - nice man, but doesn't know as much as he thinks he does about this RSD adventure!

I think I'll stop here for now...thanks for listening - my hands/arms ache. Sorry. Hope all your holidays are coming together and I wish you pain free days and much peace for all who are suffering for more than physical pain and that means all the stories about loss of someone you loved. I send you hugs of comfort.
Thanks,
Cathy:hug:

Hi Cathy,
 

They call it Complex Regional Pain Syndrome nowadays. I just wanted to use that phrase because the word Regional pops out at me nowadays. I am the same way. I am feeling it in areas that are not connected as do others on here. It sure isn't like drawing a body with dots and say that RSD connects the dots.

Another thing that comes to mind on the all over pained areas is Fibromyalgia. It can be brought on by the feet problems and the shots you got also.

I'm not saying it's what is going on with your feet but I am thinking that it is part of your problem. This is just my thinking. I do have Fibromyalgia and it affects every part of the body also. A Rhemotologist could diagnose that.

I have had cortizone shots under my right foot for a lump in my foot. Cannot think of the name right now to save my life. They wanted to do surgery to remove it but I opted for shots. This has been a few years back and I can remember how bad they hurt so I don't want to do that again.

Is it possible that you had a reaction to the corizone meds also? I don't know it was that if it would have went away by now but with RSD it could maybe have made the reaction stay or turned into RSD as you are thinking.

With Fibro there are suppose to be 18 pressure points. They are in the shoulders, behind the elbows, inside the knees and in the hip area. Again, I would have to see the chart to remember the others but that's what brought to mind Fibro. when you mentioned these areas.

I am glad to see you back. I am also glad to see you enjoying your Mom. I sure did mine when she was living. She always reminded me of the energizer bunny. She would have to let me have breaks to rest in between doing things together.

I hope you have a great Holiday Season.

Ada

aww ((((hugs))))
 

Hi Cathy..

If the pain and lumps in the feet were RSD moving to that area.. or even mildly presenting in your feet then cortizone shots would be considered very invasive by your feet.. and of course it's not progressing like they'd expect, the needles directly into a flaring RSD spot can present this way though.. I have seen it written a few times somewhere.. hmm..

http://www.rsdrx.com/rsdpuz4.0/puz_78.htm

Dr Hooshmand's lists of 20 detremental treatments talk of inserting a needle in an RSD area.. and I have seen cortizine shots used as an example elsewhere with blisters being the result as well :( . causing a venipuncture RsD picture, This could most likely cause a spread of symptoms as well Cathy, I am so sory you are going through this.:hug:

:grouphug:
If I can help let me know ok,
Sandra

Aw Thanks you two!
 

Thank you both and thanks especially for the welcome Ada. I felt loved being remembered. Fibro has been mentioned as well as intractable pain condition and a long while ago, perhaps TOS. I would just like to know what it is and why, when I need the strength more now than ever, that my body is cratering on me. I know with God's help and His angels around me that we'll get through this. My husband has been wonderful with helping with Mom and me. ;) I will just have to keep asking questions ... till later,
Have a nice Sunday,
Cathy