working around TOS/Brachial Plexopothy
 

This is a thread that was started in the Thoracic Outlet Syndrome (TOS) Forum, but due to it's content needed to be relocated here. It's a repost of sorts. TOS is a condition that can limit the use of one's upper extremeties, neck, shoulders and is incredibly painful.

I heard on CNN some Dr talking about how the brain is most stimulated by the hands - your tactile senses fire the most neurons in your brain, and you have more nerves in your hands than (anywhere?) else. With us TOSsers, we are losing/have lost a great deal of feeling in our hands... thus the brain is being stimulated less and less. Not good for the brain. I find myself unconciously rubbing my hands on 'textures' to try to 'feel' anything. Like somehow, subconsiously my brain is needing some sort of very basic stimulation.

It's my theory here, that foreplay causing... what I like to call 'core stimulation' (pleasure centers that stimulate the center of your brain/nervous system) is firing neurons? in my brain that seem to lessen my pain! On a normal day my pain level is at a 6 minimum. Seems like if my core is stimulated enough, I get a pain level of 5 for 2-3 days! I think not having to exert myself physically (no bad ergonomics) is key. Endorphans...? I wonder if this is different from what the SCS does? Dr.A has said the SCS is my last option for pain control and I am not keen on the idea.

Any thoughts on this?? Does anyone else notice a decrease in pain levels if you don't hurt yourself in the process? Anyone have helpful ideas? Since TOS hits mostly women, what are the limitations for guys with TOS? Surely this will cross disabilities... could affect RSD, arthritis... many other suffers.

Had lunch with BF at his work. I mentioned the topic at hand as I had told him about my hypothisis and how I wished I had you guys to bounce the idea off of. I asked him if he would be a willing participant in my experiment. He said "Anything to further the cause of science!". :D

Please, will the other posters from the old thread repost here? It was such a good and truly helpful thread!!
Anne

Hi
 

got your message.....DEFINATLEY....SP??? want to continue this conversation......but having cpu issues viruses and such......in Kingston.....300km outside Toronto....I live 60km the other side of Toronto...West.....so I am with BF for much needed rest from folks.......THANK GOD FOR ZANAFLEX although I have yet to feel the same pleasure he has...love the tub for warming up the muscles.....not sure about the h20.....not good for Vag.....or uterus....sorry truth......and shower my haven from all is just toooooo slippery,....need sauna asap!!!!! lol....so back to B'ton Sunday once settled in perhaps we can all get this going again!!!!!


love to all
Victoria....xoxo
ps get the buckwheat pillow and use heating pad to heat then use to go to sleep no wires to worry about in bed....warm neck like a magic bag in micro......


xo
V

theory wrong?
 

Well, I tried to do what I thought might have given me 2 days at pain level of 5... forepaly only with NO exertion. 2 days later I got the flare-up from hell.

So what was different?

When I had good results, there was a High Pressure system in my area. Last weekend, the same activity but a bad Low Pressure system moved in. I popped a migraine that NONE of my meds would touch. Luckily I didn't throw up my meds... but a 10 on the pain scale.

So weather may or may not play a role. I will continue to 'scientifically' test my theory that core stimulation may help nerves re-knit themselves, or find new pathways where the old ones have been dammaged or strangled by scar tissue.

This weekend we have a Hi Pressure coming, I'll try again to see if I can duplicate my good days.

Victoria, how was your vacation? :D :D :D

Anne

I know for me - in all phases of life/ living /activites that weather changes are very influential to how I feel. {more aches and pains}

Have a good day girls.