Small fiber Neuropathy
 

Hi
I am new hear.

I have Small Fiber Neuropathy and Autonomic Neuropathy.

I had Acute Disseminated Encephamylitis in 2000. After a week of being ill my feet started to feel like hot cotton wool, numb and painful.Then I got paralized down my left side with terrible head pains. I had slurred speech and couldn't cope with the light.

I am left with numb burning feet, legs which have to be elevated because they go purple and make my heart flutter. All the other things vary from day to day.

The more I do the worse I get.

If I use my hands like wrapping up Christmas gifts the burning gets worse and my husband said I act like a drunk.

Does anyone else have similar symptoms.:grouphug:

Dovepainter.

Hi,

Do they think the small fiber damage if from the infection?

I have symptoms that come and go. When it's bad, I also find that physical activity will make the burning worse. It's all very strange. Have you noticed any improvement over time? It might take several months to get better.

Take Care

I have small fiber neuropathy and autonomic neuropathy from SFN, so I can relate to what you are experiencing...however my causes are different.

Welcome to our forum. We have some very nice, knowledgeable, supportive and funny folks in here. At times it reminds me of the old show, "Cheers" or maybe the more recent, 'Friends'...I don't know...some of us are long timers, and some are new...but all are welcome.:D

How has it been determined--
 

--that you have a small-fiber peripheral neuropathy? What sort of tests have you has to confirm that (quantitative sensory testing, skin biopsy)?

Major reason I ask is that if you has an episode of ADEM, many of your symptoms can be traceable right to that. Acute disseminated encephalomyelitis is an inflammatory spinal cord condition that is often a precursor to MS of the spine or spinothalmic tract--in fact, under some of the diagnostic criteria of MS, if one has only one attack, it's referred to as ADEM, but two or more attacks will cause most neuros to then say it's MS-- and symptoms caused by damage to the central nervous system can absolutely exactly mimic those caused by damage to the peripheral nervous system (e.g., one can have burning feet due to damage to the nerves there, damage in the spinal cord, or even damage in the sensory cortex of the brain).

Have you seen the Liza Jane spreadhseets for neuro (and other) testing? They are very good for making sure you get a thorough work-up, and for tracking test results over time:

www.lizajane.org