Hello I am a new member
 

Dec 22nd 07, 7:40EST

Hi:

I really do not know if I am doing this correctly. I am computer illiterate.

I have been diagnosed with several nerve diseases. I really need a support group with whom I can connect. I have no close family alive anymore. This all started it 1990 with breast cancer and has progressed to fibromyalgia and other nerve diseases for which I cannot get seem to get a proper diagnosis inspite of having been to several specialists.

If one of you have time, would you please help me get started. Since I have had so many chemo treatments, radation and operations, I am no longer the sharpest tool in the drawer.

Thank you.

Debbie D :confused:

Hi Debbie and welcome to NeuroTalk. Here is the link to our Fibromyalgia forum...

http://neurotalk.psychcentral.com/forum12.html

I think you do just fine on the computer! :hug:

Debbie,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene:hug:

And when you mention chemo--
 

--toxic peripheral neuropathy immediately springs to mind; many of the metal based chemotherapy drugs are nerve toxic, and have a long history of causing neuropathy.

The good news is that over time, some recovery can usually be expected. The bad news it that nerves regenerate more slowly than just about any other body tissue, so improvement is extremely gradual and hard to notice except in long-term retrospect (we're talking months to years).

Come look at our neuropathy forum:

http://neurotalk.psychcentral.com/fo...aysprune=&f=20

Also, here's a good overview of toxic neuropathies:

http://www.neuro.wustl.edu/NEUROMUSC...ther/toxic.htm

Welcome and sorry
 

Hi there,

First of all please let me introduce myself:
My name is Alison, I am 12 years old and I suffer from RSD in my left foot and right arm.

Yes, you have posted the message correctly.:)
Instructions on getting started on Neurotalk:
To reply to someones message click on "new reply" near the top of the page, underneath where it says Reflex Sympathetic Dystrophy in bold writing. If you haven't got time to post a reply but want to Thank someone for a message click on the "thanks" button, underneath the post you want to thank.

I am so sorry about everything you are going through. I really hope that you can get the treatment you need and deserve soon. My 3 year old cousions just had a liver transplant to treat cancer so I know how hard it must have been for you.

Welcome to neurotalk

If you need anything I am here
Thanks
Alison