Lyrica, how are the side effects on you?
 

I was wondering how the side effects are on any of you on Lyrica.

I tried one last night and today I am just so out of it. I slept for hours. That's not me nor what I want.

I have a lot of trouble with meds and not yet sure I can stay on it anyway but wanted to try it. My side effects usually don't go away. It seems to me the more of a med I get built up in my system the more sick I get from it.

When I had the UTI week before last my Dr. put me on Levaquin. He gave me 7 of them and I threw all of them up as I tried them. I tried them on an empty stomach and then a full. I'm allergic to sulfa and I don't think Levaquin has sulfa in it but I sure couldn't do it.

I was just wondering how each of you on Lyrica are doing, what it seems to be doing for you and how it is helping. Another thing today I am having chest pains. That too comes with a lot of the meds I try to take so I don't know what to do about even staying on them.

Thanks for the support. I hope all of you start seeing some better days.

Ada

Alison is on 225mg of Lyrica daily (shes only 12 so not sure how this relates to an adult dosage)
It hasn't made any difference to her pain levels (nothing has at the moment) but it has helped her to sleep - or at least we assume its the Lyrica that has helped with this
Previously Alison was lucky if she managed to snatch a broken couple of hours throughtout each 24 hour period
Now she seems to sleep well for at least 4 or 5 hours straight, though she does seem to be more drowsy during the day too !!!!
Its glad to hear someone else has similar experiences when taking this drug - I thought it was only us !!!
Best wishes
Andrea (Alis mum)

Hi Ada and Andrea..
 

I was very drowsy for the first 3 weeks or so on lyrica.. adjustment period my doc said so I stayed on it, and now I find it works quite well I too am on a small dose of 225 mg because I was feeling a little disorented on the higher dose of 100 mg three times daily.. like drunkish lol.

What dose are you on Ada? hope you are feeling better but try stay with it.. if it seems too much talk to your doc.. it may be that you have to be started on a lower dose.

:grouphug:

Hi girls,
 

Geez, what kind of stomachs do you people have. They must be made out of steel.LOL

I took a 50mg. of it. I am still out of it and I still am having chest pains from taking it.

My Dr. will be back in town this weekend and he will most likely call me to check on me with the VNS which is a whole nother mess. Not good. I'll tell him about the med then.

I am glad that they are working for you Ali and Sandel.

Ada

When I did my trial run with it over 2 months it as pretty awesome! I took it just at night and it did let me sleep deeply and normally which is something I haven't done in ages! After a few days that went away so it was good while it lasted. When I upped it to 2 a day morning and night I had another 5 days of slight sleepiness and lightheadedness but then that went away as well.

This seems to be another example though of what works for one doesn't for another. For me, the drug was a miracle. It took away the numbness in my legs, helped the pain just a little, took away the worst of my night sweats and that electrical shock feeling. Too bad it costs so dang much so I can't take it like I want to. Hubby makes to much money to qualify for anything so I could, but oh well, such is life.

Hugs,

Karen

Hi Karen,
 

Thanks for the help.

I get so angry over hearing a person can't get the meds they need. Bill and I both went through that at different times so I do know what you are saying. I didn't tell my Dr. that I couldn't get a lot of my meds. He gave me all the samples he could. After I got my disability and things changed with the health care system a few years back then Bill started going through it not long before he died.

I know several people who have died due to not being able to get the meds they needed.

I am still having those chest pains today. I wore a lidocaine patch last night to calm it down. This is the first time in about 3 years I have delt with them. Certain meds brings it on. When I see my Dr. next week I will have to get some shots in my chest area to see if it will calm it down.

You're right Karen, certain meds work for some and not others.

Ada

Lyrica side affects
 

I was on it about 1 1/2 yrs ago, when it was brand new for RSD in my right leg, i hated it. not only was i so disorianted and it upset my stomach, but i couldn't get out of bed, it gave me visual disturbances, i couldn't see anything, and i gained 30 lbs. i stuck with it for 3-4 months, the pain was still threre (not as bad) but the side affects did ot out weight the benifits for me. so i came off of it. and one time i ran out, and could get ahold of my doc to get the refill, so i went through terrible withdraw symptoms until it go filled again. so yes, you can get addicted to it.

dosages too big?
 

Hello desirees3dolphins welcome to NT, what dose were you on if you don't mind me asking?

It's weird that I was on 2400 mg gabipentin/neurontin before I switched to the smaller doses of the very similar pregablin/lyrica it work so much better (for some). I think that when you are having disorenting symptoms it should be lowered to what works best for your particular needs.
Thoughts?

hugz,
Sandra

Hi Everyone!!!
 

I just started Lyrica recently and I look like the Michelin Man. Or better yet, Sta-Puff-Marshmellow guy from the movie. You know how they talk about the possibility of swelling in your feet, hands, mouth, etc and weight gain? Well I am a magnet for it. Cause I have swollen up huge! It doesn't hurt but it makes alot of folks stare. Oh well.

I like it though. It helps me sleep through the night for a change, but the down side is, I also sleep through the day.

It is not so bad that I am willing to go off of it. I think all of this is just temporary until it gets into my system. My doctor is monitoring me very closely and she wanted to take me off of it right than and there but I wouldn't let her. I said "lets wait a bit and see what happens". Finally a drug I like and I have to put up with crappy side effects like this. I gues we can't have our cake and eat it too.

Hey. I am so glad to be back after being gone for so long and I hope to visit you all more often.

Take care and Chin Up! Mark :grouphug:

Hi Mark,
 

I'm glad to see you around. You guys just disappear for days.

I can't do the lyrica. I ended up getting my chest pain going. It's still not calmed down.

The Drs. doesn't know what causes it. Some say Costo. Some say esopogeal spasms, I know I have CAD and other problems going on there but it makes me so angry that meds can sat it off.

I am so glad that it is helping you. If I could take it and it were helping, I'd do it.

I saw my PCP yesterday and he was laughing at me. He always says I'm one of a kind. He had to mark in his charts about it and the Elmiron that I can't do them. Also couldn't do the antibotic he gave me. I threw all of them back up.

I am so thankful that I have been able to do the Methadone and that my dosages donot have to be unbelievable.

Anyway, I think that Michelin Man is cute. LOL

Hope you hang around and continue to do better on the Lyrica.

Hi Desiree, Welcome to the forum and hope you do stick around.

By the way guys, the reason I haven't been on much of late is that my computer has been more sick then I am. I just got it back again yesterday and I am hoping we have gotten it well.

Ada