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-   Tourette Syndrome (https://www.neurotalk.org/tourette-syndrome/)
-   -   Welcome Friends! Roll Call, Please. (https://www.neurotalk.org/tourette-syndrome/36-welcome-friends-roll-call-please.html)

Tessa 08-22-2006 06:20 PM

Welcome Friends! Roll Call, Please.
 
Well this is very strange being the first TS post at BT but I will post and welcome old and new friends.

Stop by and say hello. :D

Take care,
Tessa

mrsD 08-22-2006 08:24 PM

hello from mrsdoubtfyre
 
hi, this is mrsdoubtfyre's son posting for her - she's still on vacation in the middle of nowhere:

I just learned about this forum, and I'll be back soon, after labor day.

see you all soon!

Chemar 08-24-2006 06:18 AM

Hi Tessa :) Hi MrsD's son :)

onexweek1 08-24-2006 04:25 PM

just checking in
 
Hi Guys, Long time T/S Dad and used to read all the post from the old board. I'm so gald I found this and just wanted you to know I was here. Thanks.......

Tessa 08-25-2006 06:28 PM

Well....great to see some friends and posts! Welcome onex and hi to Mrs. D's son and Chemar!!! Looks like we may have BT back soon but in the meantime.....hello! :)

Tak care,
Tessa

Luke's Mom 08-29-2006 09:52 PM

Hi everyone!
 
Oldtimer here....from way back beyond the "Braintalk" name. My son Luke is 21 now and has had severe TS since about 8 years old. Seems like TS is just a noisy old friend now...but back in the day I cried so many tears on this board. I'm very glad this new forum is here until if/when the old boards and archives are back up. I bet we all won't take this virtual family for granted again for a while! :)

Anyway, the main reason for tracking you all down: Luke has recently voiced a renewed interest in medication. The week after he graduated from high school he stopped all meds and said "never again". His tics have actually been pretty manageable most of the time. But, recently he started at our local community college and his tics have been crazy bad due to the stress. And, he is finding himself (again) having trouble concentrating in class. He said, just today, "now I just want to feel better and pay attention better -- I could care less if people see or hear me. Can you find out if there's any new meds out there that might help a little?"

So, although Luke's probably taken them all over the years - from clonodine to orap to neurontin to tegretol - we are on a new quest to find something now that just might take the edge off. (And naturally we would come to you all first because our doctor isn't always the most forward thinking -- and usually just takes my 'mom' suggestion.)

So, any ideas?? Anything working great for adults? Anything new out?

Thanks so much for reading. I look forward to meeting you all.

Cheryl

Chemar 08-31-2006 06:59 PM

Hi Cheryl...........nice to meet you :)

I am not a fan of the prescription meds for TS simply because of the bad reactions my son had to the ones he tried. We switched him to alternative remedies 5 years ago and have never looked back.

However, I certainly do recognise and respect that there are other people who feel differently, and also many who have seen mainly benefit and not the bad side effects that we did on prescription meds.

I have heard from a number of people who have tried ABILIFY (aripiprazole) and seem to be pleased with it. It is mainly used in schizophrenia, but seems to help reduce tics etc. too

Do encourage your son to read up on potential side effects and also FDA advisories on it tho so that he can make an informed decision on whether to try it

whatever he decides, I do hope he finds the treatment that will best help him and sure hope you will stay in touch too.

clouds z 09-01-2006 10:51 PM

i wonder if lara will show up

Tessa 09-04-2006 06:21 PM

cloudz,

I hope that Lara comes by. Very strange trying to reconnect with old friends who are out there in cyberspcae, isn't it!!

I hope all my friends are well.

Take care,
Tessa

FeelinGoofy 09-09-2006 09:26 AM

Hello....
You guys probally dont remember me, i stopped posting at MGH quite a while ago. My sons name is Scott. Hes 16 now and his tourettes is pretty much under control since most of his hormonal changes have taken place :).


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