What I've been doing to change the world
 

Hi to all of you who remember me,

I wanted to share with you what I've been up to since recovering from begin diagnosed with RSD from 9/2001 - 12/2005. I was very involved with the "other" website that many of us went to before this one was created.

This is a link to the article that was on the front page of my local paper, The Sun Chronicle in Mansfield, MA

http://www.sunchronicle.com/articles...news/news5.txt

This is a link to a short video about me and a 2 others who have experienced medical mistakes.

www.hcfama.org/quality/stories

Peace and hope to you all,
Lisa

congrats to you............
 

Lisa,
I remember you but not sure if you do me. I am glad to see that the nerve entrapment DX is what worked for you & that the Chiro treatment did the trick of fixing it. And that it continues to be fixed. I bet your daughter was in tears over having to hear a DX of RSD. But am also very glad that is not what it turned out to be for her. You are right the health care system is broken in many many ways.

Good luck to you on what you are still trying to accomplish & congrats on what you have done so far.

I am still struggling with the RSD dx for myself. Am doing better but not cured.

DebbyV

very kool..
 

Hi Lisa I was wondering how you were.. last I heard your daughter had been tentativly diagnosed and you were quite upset.. I am so glad that worked out so well for you guys as well.

You continue to fight the fight I am proud very of you and your efforts to encourage proper diagnosis's my friend.

Alot of the symptoms are so similar to other problems and I think that more awareness of RSD is needed and so an RSD protocal would help to clear up alot of grey areas doctors have, and help dignose RSD more quickly after all the proper tests (steps) have been taken and after other possible diagnosis have been eliminated.

hugs hon, you are making a diffrence.
Sandra

Entraped nerves can be the cause of RSD, it is always advisable to get as many opinions as you think to be sure that other conditions that can cause RSD or RSD like symptoms have been ruled out.

Find a doctor who is very thourough and eliminates other conditions, remembering however the window for treatment is 6 or so months for optimum recovery chances with RSD.

:grouphug:

Hey Lisa,
Many thanks for posting this, I am so proud of everything you are doing to raise awarness for RSD.
Please let me introduce myself because I am not sure if we have met before:
My name is Alison, I am 12 years old and I suffer from RSD in my left leg and right arm. I first developed RSD in my leg on the 16th March 2007 after an ankle sprain, I was diagnosed with RSD/CRPS type 1 4 months later. I was later prescribed Amitriptyline to try and help me sleep, but I suffered from a nasty side effect of "blurred vision", this resulted in a knock to my right arm. I was diagnosed with RSD 2 weeks later. The RSD in my arm keeps getting better and then having flairs.

I too am trying to raise awarness about RSD, me and my mom have been in touch with our local news station and they are really interested in interviewing us.

Take care and I hope you are OK
Thanks