I'm so tired of tests & doctors!!
 

I've been suffering from some mystery illness since August of last year - just 6 months but it seems like forever. I could barely walk for the pain in my feet, legs and arms. It seemed to start out as joint pain so I went to a rheumatologist, but as time went on it was more muscle weakness and cramping in all extremities. They checked for lupus, RA, MS. Went to a Neurologist and she did an EMG & NCS and it was okay. Blood work seems okay. They did another MRI to look at my pituitary - it has a "normal variance" so they ruled out a tumor there. It really doesn't fit fibromyalgia because of the generalized weakness and no pain in the target areas. But my arms are weak to the point of incoordination!!

I am (should say "WAS") an active 46 year old woman who last summer was building a fence and renovating a house. It seemed to have started after we returned from vacation in TX (Canton, Galveston and Corpus Christi).

In 2001 I had a car accident where I broke my neck and crushed my left hand. Had fusions at C6,C7 and T 1 and have been dealing with neuropathy in my back. The neurosurgeon did recent xrays and MRI of my spine and said only slight narrowing and nothing that would cause my symptoms.

My PA said he'd love to send me to "Dr. House" if he weren't a fictional character!!! I'm just frustrated and ready to give up.

He wants to try Lyrica to see if it helps.

Thanks for letting me vent!!!!

Welcome,
have you read anything about RSD or CRPS?
It can set in after even a small injury or surgery.
you can read about or ask questions on our forum

Reflex Sympathetic Dystrophy
Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)
http://neurotalk.psychcentral.com/forum21.html

Karen,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

I see Jo has given you a link to try out.

Again welcome, looking forward to seeing you around.

Darlene:hug:

Thanks for the welcome! I have never heard of RSD or CRPS. I will do some reading - Again - thanks!

Karen

Hi Karen! Just wanted to say Welcome to NT...:)

Hi Karen,

I am sorry to hear about your pain.

Have you had your B12 and Iron levels checked? Kow levels can contribute to pain and weakness as well. MIne were both low and it helped when I supplemented them.

If you have any questions or want to do some reading on them there are some excellent posts in our vitamins forum and some very knoeledgeable folks there.

Here is the link

http://neurotalk.psychcentral.com/forum49.html

:hug:

Hi, Karen! :Wave-Hello: Welcome to NeuroTalk!

Yikes, you've sure had your share of it. Feel free to join in anywhere. :)

Hi Karen, I'm new to this site, but heres my two cents worth.

Have you been on any antibiotics. Paticularly the Quinilones or Floxins.

That might be Cipro or Levaquin? I cannot tolerate the Levaquin. I get such pain in my legs and joints. I actually get stiff.

Taking them preceded my falling down my stairs head first. I still think it had to do with my reduced movement due to the antibiotics.

It is something to think about and the doctors might overlook it.

Tootsie

Hi!
I know what you are going through. It has been over nine years and seven Neuros and repeated painful tests and so many MRI's I glow in the dark.

The closest I got to an actual diagnosis was CIS of MS. I just tell friends the CIS stands for cute, innocent and sweet and for some reason they don't believe me...