How Is Your MS ,et al, Treating You Today.
 

As Curious said, this is about MS and she, as well as all of us know that laughter is the best medicine. Doc John doesn't want to stop that here. We can still joke around about our plight but, sometimes we need help, sympathy, a shoulder, info, expertise and other kinds of support.

So I'll be first. I'm OK today. My MS is not acting up too much lately....just kind of a permanent burr in you butt..KWIM? I am soooo glad the holidays and Kids Birthdays (3 in Jan.....4, if you count mine) are OVER!!! I am soooooo exhausted. Next year I'm taking a cruise to someplace else....any takers??

I'm not on a DMD, unless you count LDN, my hit of choice and I feel for those of you shooting up and infusing and all that other uncomfortable stuff. I did Avonex and Copaxone and steroids, but no more for me..TYVM.:D I'm SPMS and holding steady for now, except in age, of course.....I am officially now Older than Dirt (OTD):p

OK, I know some of you are suffering right now so let the rest of us support you, in some small way.

Next..:grouphug:

I will go next! I feel that Rebif has run its course for me and that it might be time to move on to something else. (5+ years on the stuff) And...these headaches.:mad: I am on these drugs so I don't get headaches and 'Hello'! Not working.:( So I guess I should go to the Dr. huh?

I'm done complaining for the day. (passes the whine bottle to.......)

I am doing ok today. Experienced alot of muscle spasms in legs yesterday. I guess I overdid it on Saturday. I was diagnosed last April(2007). I am 51. I experienced my first flare in March- ssemed to last several months. I suppose I had some minor symptoms prior to that time.

I first tried betaseron (had an allergic reaction after 2 weeks when increasing dose) and then was on copaxone for about 4 1/2 months (had 5 not so much fun IPIR's). So My neuro too me off it it and I had my first tysabri treatment in Dec. During my 2nd treatment, I experienced an allergic reaction and had to have benadryl put in iv. So for my next appointment I have to premedicate with benadryl.

I feel as if I have had more energy since starting tysabri and I am hopeful that it will help me and I can continue to take it. Otherwise I am out of options for now as far as DMd's go.

My biggest fear in terms of dealing with all of this is the unknown. I am trying to take it day by day but that it difficult for a planner.

Ok I will go next.

I have RRMS and have been on Copaxone for almost a year! I was shooting Avonex before that but it was not working for me.

I have a lot of spasicity which causes me pain and discomfort.

I am a wallwalker unless I am out in public and then I use a 3 wheel walker.

I have had 2 exacerbations this past year and hoping that things will settle down for me:)

((((((Taffy)))))) I would say 5 yrs is a pretty good trial run. Something else may just do the trick. What does Doc say, besides Duhhhh?:D

I'm surprised you've put up with headaches this long...not funny. I think our Neuros sometimes scare us into thinking, that if stop our DMD, our MS will take off like a runaway freight train. Not true except I have heard that stopping Tysabri may have that effect.:eek:

Grab your Doc by the **** collar and demand something new better and different. Let us now how that goes.:D

:hug:

Hi Beth. Do you take any extra Magnesium? Some people swear that it helps with the spasticity. Let me know it that helps you. :hug:

Hey Taffy...how much Topamax are you taking? Maybe you need to up the dose?

400 mg a day is my dose. I tried 375 and immediately got a headache! Back up to 400! 450 was too much...didn't like the side effects!

Yeah, maybe you SHOULD call the doc!!!

:eek:

Sorry about your pain and all your trouble with Meds., Barb. I hope that you are able to stay on Tysabri, since it seems to be helping you.

You might try a little extra magnesium too, for the spasticity??

Let us know how your next Ty infusion goes and the best of luck..:hug:

Good idea sally!
MS-wise, I'm still going well, it's my darn achilles tendon again. I think I walked too hard last Wed and managed to hurt it again and now it's stiff when I walk. It took forever to heal last time, and I'm impatient. I started walking again yesterday and after it warmed up, it was ok, but I'm not back up to ramming speed yet.

I'm glad your MS is not giving you fits. Sorry about the achilles tendon..OUCH!

Let me know when you get up to ramming speed and I'll try whatever you did..LOL.

(((((Greta)))))