NeuroTalk Support Groups

First off I will tell everyone my diagnosis;Focal structure of CSF at the posterior aspect of the posterior fossa extending just right of midline and measuring 2.2 X 2.8....thats the report and not in laymans language. However, I have a friend whose husband passed in 2003 of a brain tumor and through her all of my test where placed on a CD a taken to Dr. Brem, who is the top neurologist at the Moffitt Cancer Center in Tampa, FL..Therefore, unlike others I have been blessed with getting the help I need and have the top doctors that are available in Florida. Although, I do, the symptoms are what matters and mine are as follows; migraines, dizziness, black outs, fatigue, unbalanced, body is never free of pain, chronic back pain, and vision lost to where everything is blury....So I might have the best physicians and I do have insurance and meds but the symptoms are what have knocked me to my knees. I was diagnosed in July of 2006 at the age of 46..My life consisted of, on the go constantly, working many charity events, helping others 24-7, and living life to the fullest. Now it has been a battle just to get out of bed and trying to function like a normal person. I am fatigued constantly and never sleep, another symptom. I might sleep for 2 hours but am wide awake. The most devasting thing to me is the pain and the prossure in my head....some times I would rather cut my head off then deal with it....I have ignored all the symptoms till this weekend when I attended a conference in Tampa for the Brain Tumor Awareness Network where I am involved in the charity known as; "Hidden Under Our Hats." I ended up having someone drive me home Saturday because I was too sick to stay and help....it was so devasting to me since this is one charity that I work hard at...So if anyone you know is an Angel or fighting brain tumors please ask me for the info so that you may send me a special hat of theirs. Also, if you would like more info about this charity let me know and I will tell you. To this date we have 2,500 hats and more being sent to us everyday. The month of May is Brain Tumor Awareness Week and we will be flying the hats to the Washington Monument to dispalay them to the legislators for mor monies. That is another thing that has devastated me...the cyst's that we have are not if categorizied as a disease...we are not even allowed to call it that and have to work through non-profit organizations to help us...I am brainstorming on what brain I have left(LOL) to figure out what to do to help myself and others who have this Cyst...Will I believe that is enough about me...I hope to meet a lot of you from this site and with each other we can and will survive and fight this.....May God Bless You and the Angels watch over you and your Loved Ones.
PrincessDe (denise)
PS. I cant get the smilies to work(HELP)