Phyllis Wick
 

Hi! I've been diagnosised with MS, but two neurologist say I do not have MS. My MRI's tell them to look for something else. The MRI's do say I have a tarlov cyst that is 2CM and I looked up tarlov cyst and it has the same symptoms that I have.

I have every lab test and spinal tabs (2), I do not have pheripheral neuropathy either, but my feet are on fire.

The last neurologist said that to keep taking the two medicines that I take and nothing else can be done.

Why are docotors giving up and not doing anything. Not just one, I have even been to the Barrow's and they just say I have MS and they don't care what my MRI's say and it face it.

Any help out there?

Hi Phyllis,
Really all we want is an answer huh? I've had symptoms since 1999. It was not until the past 6 months that I had to start seeking answers when my body went numb on the left side. I also have had vertigo and vision disturbances. I also have some cognitive problems that are interphering with daily life and I pee alot.

I had an MRI in 2001 but it was clear so I just went about my business. The past 3 months I've had 3 MRI's, VEP's and last week a Lumbar Puncture (spinal tap). I had a bad experience with the LP and ended up with a blood patch on friday. Feeling much better today, but think I over did it trying to clean my house today.

I call myself in limbo, waiting for someone to give me a diagnosis. I hope to have one next week. It looks like MS (2 lesions on the MRI now) but its not like I'm looking forward to it, I just want to have a name for what I've been going thru for years, so I can address it and move on.

I'm wondering, if you've had a doctor diagnose you, why are you still looking for answers? There are drugs out there that can delay the process, if you choose to use them. I don't know if I will yet myself, I'll cross that bridge when I come to it and probably come here and get everyones personal opinion to help guide me to what is best for me.

Right now, my feet and hands have a buzzing going on and I've been noticing my lip, chin and cheek get numb too lately. More fun!! Just know you are not alone and we don't have to be so depressed about it. There are worse things. I don't mean to minimize it. I too have been making deals with God, crying in my husbands lap, going to every internet site I can find with answers...but what I found is this....having people with the same symptoms as I to talk to has changed everything for me. I hope we can help you feel better just by being here with you.

Hugs