Myasthenia Gravis
 

I have had MG since November of 2004 and had a Malignan Thumus Gland removed. I have had numerous problems,
Had to be interbated 3 times and spent a lot of time in intensive care and the hospital.
I have been through the mill trying Cellcept, Imuran, and Cyclosporan after beeing on them for the time they thought reasonable changed from one to the other. I am on the staples, Prednisone, Mestinon etc. and last Sept was taken off Cyclosporin because it was damaging my Kidneys and didn't really seem to be doing anything. In the beginning of this month [January I started having problems with the usual muscle weakness, double vision etc. and my doctor thinks it's because I am off the Cyclosporin and want me to meet with my Nephrologist to see if I can go back on the Cyclosporin, while I am not looking forward to it because it makes me sick to my stomach all the time
and I am taking enough pills as it is I guess I have to do what I have to do.
Thanks for listening,
Ted........

Welcome Ted sorry to here you are going thru so much.

I hope things start getting a little better for you.

Hi Ted and Welcome to NT. Cyclosporin is powerful. My Son had a kidney transplant and started on Cyclo and Immuran. The side effects from the Cyclo were extremely harsh on him, so they switched him to Tacrilomas (Prograf) .. We found out 10 yrs later, that the Tacrilomas was damaging his new kidney, so he is now on Cellcept.

I cannot tell you which of them all is the lesser of the evils, but when your'e taking antirejection meds, it's a stall.

Hopefully, you can gather some good info here.

Welcome again..

Hi there Ted.
 

I recognized the name. :p

Have you gotten a chance to interact with our Myasthenia Gravis forum yet?
Lots of good expertise and empathy over there:

http://neurotalk.psychcentral.com/forum77.html