multiple system atrophy
 

I have just been diagnosed (likely ) with MSA -Anyone else with the condition that may be able to offer some advice on managing the disease
best wishes to all
landlord

Welcome to Neurotalk.
 

I'm not familiar with multiple system atrophy as a condition, although I am somewhat familiar with multiple system failure from B12 deficiency--is it in any way related?

In any case, good to have you. Feel free to peruse all our forums, and if you need any navigation help, just ask.

G'day landlord,
Welcome to the NeuroTalk Community.

I did a quick search looking for any old posts but couldn't really find anything specific. We don't have an MSA forum here, but there are a couple of forums where you might like to post and see if you get any direction from the users there. The first one is the Parkinson's Forum and the other is the General Health Conditions & Rare Disorders forum. We also don't have a Shy-Drager Syndrome forum here, so can't direct you there either I'm sorry. Honestly for now or until maybe someone finds more specific posts, then I'd be trying the PD Forum or the General Health and Rare Disorders Forum.

PD Forum

General Health Conditions & Rare Disorders

I hope someone else comes along who might be able to help you more.

take care,
Lara

In addition to the forums that Lara has shared the links to, I don't know if you may have also seen this site:

http://www.wemove.org/msa/
Multiple System Atrophy Information for Patients and Caregivers

thank you for your reply regarding M S A -it is probably known as something else outside the U K perhaps Parkinsons "plus "

Hello,
Welcome to Neurotalk, if you need anything just ask. I will try and help you if I can.
Thanks for becoming a member of Neurotalk, you will find many great people here.